September #PANCSM Chat: Caregiver Support

pancsmchat Good evening everyone. We are about to get started with tonights #PancSM chat, our monthly Twitter forum to discuss #PancreaticCancer

Thu Sep 4 18:00:26 PDT 2014   ReplyRetweetFavorite

pancsmchat Tonight we will be joined by #PancreaticCancer experts to discuss caregiver support and the stressors of pancreatic cancer. #PancSM

Thu Sep 4 18:01:19 PDT 2014   ReplyRetweetFavorite

njarellano .@pancsmchat Good evening everyone ! #PANCSM

Thu Sep 4 18:01:49 PDT 2014   ReplyRetweetFavorite

zachweismann Great. Really looking forward to it and ready to start! @PancSMChat #pancsm

Thu Sep 4 18:02:17 PDT 2014   ReplyRetweetFavorite

pancsmchat Please use #PancSM to help us tag and track all tweets. Who’s joining us tonight – please introduce yourselves. #PancSM

Thu Sep 4 18:02:36 PDT 2014   ReplyRetweetFavorite

tgeorgemd RT @NirajGusani: Join us @PatientPower @PanCAN right now for #PancSM chat to discuss caregiver support and stress in #PancreaticCancer

Thu Sep 4 18:02:54 PDT 2014   ReplyRetweetFavorite

pancdoc @PancSMChat Hello all. Mark Bloomston here. Surgical Oncologist @OSUCCC_James #PancSM

Thu Sep 4 18:03:12 PDT 2014   ReplyRetweetFavorite

zachweismann I am zach Weismann. 28 year old son of my mom who was recent diag 2 month ago – stage IV adenocarcinoma metasis to liver #pancsm

Thu Sep 4 18:03:58 PDT 2014   ReplyRetweetFavorite

mkatzmd Hi guys Matt Katz here. Surgical Oncologist at MD Anderson. #pancsm

Thu Sep 4 18:04:08 PDT 2014   ReplyRetweetFavorite

nirajgusani Niraj Gusani, MD, Surgical Oncologist at @PennStHershey specializing in pancreas & liver cancer #PancSM Looking forward to great discussion

Thu Sep 4 18:04:18 PDT 2014   ReplyRetweetFavorite

pancdoc @zachweismann sorry to hear that. i hope we can help tonight. #PancSM

Thu Sep 4 18:04:37 PDT 2014   ReplyRetweetFavorite

pancdoc Hi Niraj and Matt. Glad you’re here #pancsm

Thu Sep 4 18:05:32 PDT 2014   ReplyRetweetFavorite

zachweismann Thank you all for taking the time out of your very busy days. I’d loveto start by asking a few questions about cachexia #pancsm @PancSMChat

Thu Sep 4 18:06:10 PDT 2014   ReplyRetweetFavorite

tgeorgemd Hi everyone. Thom George, Medical Oncology at @UFHealth specializing in GI cancers including #pancreaticcancer @PancSMChat #pancsm #cancer

Thu Sep 4 18:06:20 PDT 2014   ReplyRetweetFavorite

pancsmchat Hi @zachweismann thanks for joining us and sorry to hear about your mom. Hopefully we can help with her situation somewhat tonight #PancSM

Thu Sep 4 18:06:27 PDT 2014   ReplyRetweetFavorite

njarellano Hello everyone. Nelson Arellano. Houston Tx #PANCSM

Thu Sep 4 18:06:38 PDT 2014   ReplyRetweetFavorite

pancdoc @NJArellano Hey Nelson. Glad you made it again. #pancsm

Thu Sep 4 18:07:15 PDT 2014   ReplyRetweetFavorite

pancsmchat Great – let’s get started. T1 First – let’s identify some of the issues around a diagnosis of @PancreaticCancer #pancSM

Thu Sep 4 18:07:29 PDT 2014   ReplyRetweetFavorite

pancsmchat T1 both from a provider & patient standpoint T1 First – let’s identify some of the issues around a diagnosis of @PancreaticCancer #pancSM

Thu Sep 4 18:08:18 PDT 2014   ReplyRetweetFavorite

njarellano @pancdoc Hi Marck. #PANCSM

Thu Sep 4 18:08:36 PDT 2014   ReplyRetweetFavorite

zachweismann My mom (60yrs), care MDanderson had 3 chemo treatments. 2 ffnox, 1 gembrax and suffering heavily from cachexia. How can we do more? #pancsm

Thu Sep 4 18:08:37 PDT 2014   ReplyRetweetFavorite

pancdoc @PancSMChat @PancreaticCancer T1- lots of stressors for patients and family: social, financial, emotional, physical #pancsm

Thu Sep 4 18:09:04 PDT 2014   ReplyRetweetFavorite

nirajgusani I’d say one of the biggest issues is FEAR. Patients tend not to know much about #pancreaticCancer but most of what they hear is BAD. #PancSM

Thu Sep 4 18:09:05 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @pancdoc@PancSMChat @PancreaticCancer T1- lots of stressors for patients and family: social, financial, emotional, physical #pancsm

Thu Sep 4 18:09:14 PDT 2014   ReplyRetweetFavorite

zachweismann I would agree with those comments around fear and lack of information on PC. Not commonly known like other cancers #pancsm

Thu Sep 4 18:10:17 PDT 2014   ReplyRetweetFavorite

nirajgusani Great question @zachweismann – maintaining physical strength and appetite in the midst of treatment can be extremely hard. #pancsm

Thu Sep 4 18:10:31 PDT 2014   ReplyRetweetFavorite

pancdoc @zachweismann cachexia is a HUGE issue for #pancreaticcancer patients #pancsm

Thu Sep 4 18:10:49 PDT 2014   ReplyRetweetFavorite

pancdoc @NirajGusani @zachweismann frequent small meals and supplements are often key #pancsm

Thu Sep 4 18:11:37 PDT 2014   ReplyRetweetFavorite

mkatzmd We have a great palliative care group and alternative medicine group at MDACC Zach… both are of great help in this situation. #pancsm

Thu Sep 4 18:11:49 PDT 2014   ReplyRetweetFavorite

pancsmchat Providers / docs – beyond discussing treatment, what is the most imp you tell patients early on after #pancreaticCancer diagnosis? #PancSM

Thu Sep 4 18:11:58 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @mkatzmd: We have a great palliative care group and alternative medicine group at MDACC Zach… both are of great help in this situation…

Thu Sep 4 18:12:08 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @pancdoc@NirajGusani @zachweismann frequent small meals and supplements are often key #pancsm

Thu Sep 4 18:12:14 PDT 2014   ReplyRetweetFavorite

tgeorgemd Agree @zachweismann regarding lack of info. #pancreaticcancer projected to be #2 cancer by 2030. We can do more. @PancSMChat #pancsm

Thu Sep 4 18:12:35 PDT 2014   ReplyRetweetFavorite

zachweismann as caregivers, besides encouraging to eat smoothies/shakes/ensures what other options to explore? My mom has HHC pt and ot… #pancsm

Thu Sep 4 18:12:46 PDT 2014   ReplyRetweetFavorite

nirajgusani And even small amts of physical activity (just walking) can be helpful in maintaining normalcy. @pancdoc@zachweismann #pancsm

Thu Sep 4 18:13:02 PDT 2014   ReplyRetweetFavorite

pancdoc @PancSMChat attitude counts #pancsm

Thu Sep 4 18:13:10 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @pancdoc@PancSMChat attitude counts #pancsm

Thu Sep 4 18:13:18 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @TGeorgeMD: Agree @zachweismann regarding lack of info. #pancreaticcancer projected to be #2 cancer by 2030. We can do more.@PancSMChat

Thu Sep 4 18:13:26 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @zachweismann: as caregivers, besides encouraging to eat smoothies/shakes/ensures what other options to explore? My mom has HHC pt and o…

Thu Sep 4 18:13:37 PDT 2014   ReplyRetweetFavorite

klemansdl @PancSMChat We spend a lot of time discussing emotional concerns, offering support & resources. Validating, normalizing #pancsm

Thu Sep 4 18:13:45 PDT 2014   ReplyRetweetFavorite

phidias51 I’m Mark Fortner. I lost my Mother and Grandmother to Pancreatic Cancer several years ago. #pancsm

Thu Sep 4 18:13:56 PDT 2014   ReplyRetweetFavorite

nirajgusani supportive caregivers go a LONG LONG way in helping patients through their journey #pancsm

Thu Sep 4 18:14:18 PDT 2014   ReplyRetweetFavorite

mkatzmd Hi Mark. sorry to hear. #pancsm

Thu Sep 4 18:14:36 PDT 2014   ReplyRetweetFavorite

pancdoc @phidias51 sorry to hear that Mark. what did you find most helpful for you to do? #pancsm

Thu Sep 4 18:14:46 PDT 2014   ReplyRetweetFavorite

keniaarias RT @NirajGusani: supportive caregivers go a LONG LONG way in helping patients through their journey #pancsm

Thu Sep 4 18:14:56 PDT 2014   ReplyRetweetFavorite

njarellano @pancsmchat Dealing with cancer can be an emotional roller coaster #PANCSM

Thu Sep 4 18:15:01 PDT 2014   ReplyRetweetFavorite

pancsmchat Hi @phidias51 Thanks for joining – sorry to hear about your family members #pancsm

Thu Sep 4 18:15:02 PDT 2014   ReplyRetweetFavorite

zachweismann That is correct- we have seen MDACC palliative integ med. Big helps. But desire & ability to tolerate over sideeffects hard @mkatzmd #pancsm

Thu Sep 4 18:15:28 PDT 2014   ReplyRetweetFavorite

nirajgusani Concern “am I next” can be real issue for caregivers and family, even if there is no strong family history of #PancreaticCancer #pancsm

Thu Sep 4 18:15:52 PDT 2014   ReplyRetweetFavorite

zachweismann Around supplements, any proven to aid cachexia the most? Attitude is vital as well- good point #pancsm

Thu Sep 4 18:15:54 PDT 2014   ReplyRetweetFavorite

njarellano @nirajgusani I agree. Caregivers also may experience a range of various feelings, just as patients do. #PANCSM

Thu Sep 4 18:16:38 PDT 2014   ReplyRetweetFavorite

phidias51 @pancdoc I think the biggest mistake I made, was not encouraging my Mom to seek palliative care. #pancsm

Thu Sep 4 18:16:39 PDT 2014   ReplyRetweetFavorite

pancsmchat Great point @klemansdl thanks for joining tonight #pancsm

Thu Sep 4 18:16:57 PDT 2014   ReplyRetweetFavorite

pancdoc @phidias51 important point! sometimes the best treatment is support over chemo/surgery #pancsm

Thu Sep 4 18:17:14 PDT 2014   ReplyRetweetFavorite

njarellano @nirajgusani for example, anger, guilt, grief, hopelessness,loneliness, and depression etc #PANCSM

Thu Sep 4 18:17:19 PDT 2014   ReplyRetweetFavorite

nirajgusani Hi Mark – sorry to hear about your loss @phidias51 Do you feel that you and your family had enough support during these illnesses? #pancsm

Thu Sep 4 18:17:46 PDT 2014   ReplyRetweetFavorite

pancdoc we’re finding that caregivers carry WAY more stress than patients using stress inventories #pancsm

Thu Sep 4 18:18:00 PDT 2014   ReplyRetweetFavorite

phidias51 @pancdoc The disease progresses faster than family can manage the stages of grief. #pancsm

Thu Sep 4 18:19:06 PDT 2014   ReplyRetweetFavorite

zachweismann I would agree re caregiver stress as one of my moms top caregivers @phidias51 can u say more re palliative care services #pancsm

Thu Sep 4 18:19:23 PDT 2014   ReplyRetweetFavorite

nirajgusani Thx 4 sharing. Not a mistake. Only now are we realizing that pall care should be offrd to all pts, not just end of life @phidias51 #pancsm

Thu Sep 4 18:19:39 PDT 2014   ReplyRetweetFavorite

klemansdl Caregivers are often reluctant to address their own needs esp w/clinicians. Worried about patient. Risk of caregiver burnout. #pancsm

Thu Sep 4 18:19:43 PDT 2014   ReplyRetweetFavorite

mkatzmd Zach no supplement proven but this is not my area of expertise… talk to your nutritionist as well. you have one assigned to you. #pancsm

Thu Sep 4 18:20:20 PDT 2014   ReplyRetweetFavorite

nirajgusani Yep – hard for many to cope and to continue to give care amidst fear, anxiety, fatigue, burnout #pancsm

Thu Sep 4 18:20:45 PDT 2014   ReplyRetweetFavorite

klemansdl Emotional support is crucial but so is addressing practical/social needs (finances, job, disability, AdvDir, care planning) #pancsm

Thu Sep 4 18:21:32 PDT 2014   ReplyRetweetFavorite

pancsmchat OK great points so far. Patients/family – name 3 things you wish could be improved about going through / dealing with dx / treatment #PancSM

Thu Sep 4 18:21:47 PDT 2014   ReplyRetweetFavorite

pallonc RT @phidias51@pancdoc I think the biggest mistake I made, was not encouraging my Mom to seek palliative care. #pancsm

Thu Sep 4 18:22:08 PDT 2014   ReplyRetweetFavorite

pallonc RT @klemansdl: Emotional support is crucial but so is addressing practical/social needs (finances, job, disability, AdvDir, care planning) …

Thu Sep 4 18:22:23 PDT 2014   ReplyRetweetFavorite

pancsmchat And docs/providers/clinicians – 3 things you stress in terms of supportive care for your #pancreaticCancer patients #pancsm

Thu Sep 4 18:22:27 PDT 2014   ReplyRetweetFavorite

tgeorgemd MT @klemansdl: Caregivers reluctant to address their own needs esp w/ docs. Worried about patient. Risk of caregiver burnout. #pancsm

Thu Sep 4 18:22:29 PDT 2014   ReplyRetweetFavorite

phidias51 @zachweismann Pain mgmt is critical. A large % of pts get perineural invasion, and the celiac nerve block provides temp relief. #pancsm

Thu Sep 4 18:22:31 PDT 2014   ReplyRetweetFavorite

justjakekc RT @PatientPower: More options than ever for those suffering from Pancreatic Cancer! @PanCan #pancsm http://t.co/Gn2ysQ66YO

Thu Sep 4 18:22:54 PDT 2014   ReplyRetweetFavorite

njarellano @pancsmchat Working as a team (oncologist, geriatricians, psychiatrists, pharmacists, social workers, nurses & dietitians) #PANCSM

Thu Sep 4 18:23:42 PDT 2014   ReplyRetweetFavorite

njarellano @pancsmchat can help to identify and manage the stressors which can limit effective cancer treatment. #PANCSM

Thu Sep 4 18:23:56 PDT 2014   ReplyRetweetFavorite

nirajgusani Totally agree – and most pts I see don’t know this is an option. Should never be afraid or reluctant to treat pain in a cancer pt. #pancsm

Thu Sep 4 18:24:00 PDT 2014   ReplyRetweetFavorite

zachweismann 1.proactive palliative care to prevent side effects vs react to them 2. Checking in with patients & caregivers. Does a lot to cgs #pancsm

Thu Sep 4 18:24:39 PDT 2014   ReplyRetweetFavorite

pancdoc 3 things: 1. pain not an option; 2. everyone’s opinion matters; stopping treatment is not the same as giving up #pancsm

Thu Sep 4 18:24:58 PDT 2014   ReplyRetweetFavorite

nirajgusani yes @klemansdl need good social workers and supportive oncology team #pancsm

Thu Sep 4 18:25:11 PDT 2014   ReplyRetweetFavorite

nirajgusani Grt points! 3 things: 1. pain not an option; 2. everyone’s opinion matters; 3 stopping treatment is not the same as giving up #pancsm

Thu Sep 4 18:26:20 PDT 2014   ReplyRetweetFavorite

njarellano @nirajgusani @klemansdl Caregiving is learning how to work with doctors and other health care professionals #PANCSM

Thu Sep 4 18:26:43 PDT 2014   ReplyRetweetFavorite

njarellano @nirajgusani @klemansdl so they treat you as an important member of your loved one’s healthcare team #PANCSM

Thu Sep 4 18:26:56 PDT 2014   ReplyRetweetFavorite

nirajgusani Yes @zachweismann I like 2. Checking in with patients & caregivers. This really helps for pts/caregivers to know that we understand #pancsm

Thu Sep 4 18:27:15 PDT 2014   ReplyRetweetFavorite

phidias51 @PancSMChat There really isn’t any good way to get the news. During treatment you find yourself watching biomarkers… #pancsm

Thu Sep 4 18:27:28 PDT 2014   ReplyRetweetFavorite

zachweismann 3) give caregiver chance w.doctor alone to ask upsetting/challenging questions w.out patient. Often prep for weeks for 30min appt #pancsm

Thu Sep 4 18:27:46 PDT 2014   ReplyRetweetFavorite

pancdoc patients often cont treatment longer than they want so as to not disappoint their team. have to let them know it’s OK to stop #pancsm

Thu Sep 4 18:27:55 PDT 2014   ReplyRetweetFavorite

nirajgusani Yes – The caregivers are just as imp as the patient @NJArellano@klemansdl #PANCSM

Thu Sep 4 18:28:13 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @pancdoc: patients often cont treatment longer than they want so as to not disappoint their team. have to let them know it’s OK to stop …

Thu Sep 4 18:28:26 PDT 2014   ReplyRetweetFavorite

phidias51 @PancSMChat … managing the morphine bolus at night, waiting for rounds, and not dealing w/ the reality of the situation. #pancsm

Thu Sep 4 18:28:29 PDT 2014   ReplyRetweetFavorite

nirajgusani Thx @zachweismann good reminder for us to do this: 3) give caregiver chance w.doctor alone to ask upsetting/challenging questions #pancsm

Thu Sep 4 18:29:08 PDT 2014   ReplyRetweetFavorite

pancdoc i give my email to everyone involved with an open invite to ask anything with warning that i’ll answer honestly #pancsm

Thu Sep 4 18:29:28 PDT 2014   ReplyRetweetFavorite

nirajgusani Yes @phidias51 sometimes all members of the team – pt, caregiver provider can be suffering from DENIAL #pancsm

Thu Sep 4 18:29:58 PDT 2014   ReplyRetweetFavorite

zachweismann @phidias51 @PancSMChat #pancsm agreed. A lot of waiting to watch overall health decline. Even doing all can w. Nourishment, exercise etc

Thu Sep 4 18:30:00 PDT 2014   ReplyRetweetFavorite

cancersurg
  1. Hope is important 2. Minimize other stressors as best you can – not time to diet etc #PancSM

Thu Sep 4 18:30:04 PDT 2014   ReplyRetweetFavorite

phidias51 @pancdoc It’s not just the team, it’s the family. Palliative care can be seen as giving up, and no one wants to give up. #pancsm

Thu Sep 4 18:30:21 PDT 2014   ReplyRetweetFavorite

pancdoc @cancersurg Hey Carl. thanks for joining #pancsm

Thu Sep 4 18:30:45 PDT 2014   ReplyRetweetFavorite

cancersurg
  1. At some point the focus changes from paying attention to the cancer to only attention for the person #PancSM

Thu Sep 4 18:30:50 PDT 2014   ReplyRetweetFavorite

tgeorgemd RT @NirajGusani: Thx @zachweismann good reminder for us: 3) give caregiver chance w.doctor alone to ask upsetting/challenging ?s #pancsm

Thu Sep 4 18:30:54 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @pancdoc@cancersurg Hey Carl. thanks for joining #pancsm

Thu Sep 4 18:30:59 PDT 2014   ReplyRetweetFavorite

pancsmchat Thanks for joining #PancSM tonight @cancersurg

Thu Sep 4 18:31:30 PDT 2014   ReplyRetweetFavorite

zachweismann I think MDACC & others view palliative care as side effect mgmt vs hospice & this is crucial. Frustrate lack side effect management #pancsm

Thu Sep 4 18:31:55 PDT 2014   ReplyRetweetFavorite

klemansdl @cancersurg #PancSM. YES! It’s so important for the patient and family to know we see them as more than a disease. Mind-Body-Spirit

Thu Sep 4 18:32:03 PDT 2014   ReplyRetweetFavorite

pancdoc RT @klemansdl #PancSM. YES! It’s so important for the patient and family to know we see them as more than a disease. Mind-Body-Spirit

Thu Sep 4 18:32:39 PDT 2014   ReplyRetweetFavorite

pancsmchat Great discussion – T2 Are there any pitfalls in our current approach to #PancreaticCancer mgmt with regards to support services? #pancSM

Thu Sep 4 18:32:57 PDT 2014   ReplyRetweetFavorite

mikecowher RT @pancdoc: patients often cont treatment longer than they want so as to not disappoint their team. have to let them know it’s OK to stop …

Thu Sep 4 18:33:09 PDT 2014   ReplyRetweetFavorite

mkatzmd Yes. palliative care and hospice are two entirely different things. #pancsm

Thu Sep 4 18:33:10 PDT 2014   ReplyRetweetFavorite

phidias51 @cancersurg That’s really critical. It’s important for both clinicians and family members to let the pt direct their care. #pancsm

Thu Sep 4 18:33:15 PDT 2014   ReplyRetweetFavorite

zachweismann As cg, day can be so hard to get 3 sips of smoothie down, to get a follow up call from oncology team, unprompted means world #pancsm

Thu Sep 4 18:33:31 PDT 2014   ReplyRetweetFavorite

njarellano 3 things: 1. Pain 2. Nutrition 3. Constipation #PancSM

Thu Sep 4 18:33:42 PDT 2014   ReplyRetweetFavorite

pancdoc T2- how can we better prepare caregivers….besides this tweet chat? #pancsm

Thu Sep 4 18:34:35 PDT 2014   ReplyRetweetFavorite

nirajgusani Yes @NJArellano: 3 things: 1. Pain 2. Nutrition 3. Constipation #PancSM or the opposite of 3. Diarrhea – can make live miserable

Thu Sep 4 18:34:40 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @pancdoc: T2- how can we better prepare caregivers….besides this tweet chat? #pancsm

Thu Sep 4 18:35:00 PDT 2014   ReplyRetweetFavorite

zachweismann What missing- often left up to socialworker to describe palliative services after side effects appear. Incl pt, ot, hhc #pancsm

Thu Sep 4 18:35:13 PDT 2014   ReplyRetweetFavorite

tgeorgemd Impt to change this perception @phidias51@pancdoc: Palliative care can be seen as giving up, and no one wants to give up. #pancsm

Thu Sep 4 18:35:18 PDT 2014   ReplyRetweetFavorite

zachweismann We expected to hear more suggested from oncologists vs is asking what else can we do #pancsm

Thu Sep 4 18:35:35 PDT 2014   ReplyRetweetFavorite

nirajgusani Do you guys (other providers) use your websites, etc for FAQ and other resources for cg? We don’t as much as I think we should #PancSM

Thu Sep 4 18:35:54 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @TGeorgeMD: Impt to change this perception @phidias51@pancdoc: Palliative care can be seen as giving up, and no one wants to give up. …

Thu Sep 4 18:36:17 PDT 2014   ReplyRetweetFavorite

nirajgusani So we should be more proactive… Great point RT @zachweismann: We expected to hear more suggested from oncologists #pancsm

Thu Sep 4 18:39:05 PDT 2014   ReplyRetweetFavorite

nirajgusani Agree RT @phidias51@cancersurg It’s important for both clinicians and family members to let the pt direct their care. #pancsm

Thu Sep 4 18:39:56 PDT 2014   ReplyRetweetFavorite

klemansdl T2: If pts/fam live distance, it is challenging to get them help esp if can’t/won’t come back for supp svc #pancsm

Thu Sep 4 18:40:02 PDT 2014   ReplyRetweetFavorite

zachweismann
  1. My mom, wish cachexia talked about more in beg. even tho difficult. ESP since 80% patients get it #pancsm

Thu Sep 4 18:40:50 PDT 2014   ReplyRetweetFavorite

nirajgusani Huge issue – in a big center, many pts coming from far far away. When they go back, hard to maintain support @klemansdl #pancsm

Thu Sep 4 18:41:18 PDT 2014   ReplyRetweetFavorite

pancdoc @zachweismann sometimes pt and cg think MD only wants to talk cancer so avoids discussing stressors; that’s where the team can help #pancsm

Thu Sep 4 18:41:47 PDT 2014   ReplyRetweetFavorite

phidias51 @pancdoc Set expectations about the progression of the disease. If a pt has 3 months, families need to know 2.5 may be conscious. #pancsm

Thu Sep 4 18:41:51 PDT 2014   ReplyRetweetFavorite

nirajgusani Great point – many patients have already lost weight b4 dx, but we don’t always stress further wt loss @zachweismann #pancsm

Thu Sep 4 18:42:09 PDT 2014   ReplyRetweetFavorite

zachweismann Agree with travel and distance. Important issue #pancsm

Thu Sep 4 18:42:44 PDT 2014   ReplyRetweetFavorite

tgeorgemd Agree @zachweismann Most anticipate fatigue, cachexia totally different and much worse complication of #pancreaticcancer #pancsm

Thu Sep 4 18:42:49 PDT 2014   ReplyRetweetFavorite

mkatzmd Setting expectations is difficult for many even experienced oncologists, unfortunately. #pancsm

Thu Sep 4 18:43:17 PDT 2014   ReplyRetweetFavorite

nirajgusani Great point @pancdoc my pts often more comfortable talking to my (awesome) nurse coordinator about these issues @zachweismann #pancsm

Thu Sep 4 18:43:19 PDT 2014   ReplyRetweetFavorite

njarellano An important issue no less important : “ADDRESSING FINANCIAL AND LEGAL MATTERS” #PANCSM

Thu Sep 4 18:43:38 PDT 2014   ReplyRetweetFavorite

nirajgusani Yes – many lost jobs, insurance, etc while dealing w this disease @NJArellano ADDRESSING FINANCIAL AND LEGAL MATTERS #PANCSM

Thu Sep 4 18:44:36 PDT 2014   ReplyRetweetFavorite

zachweismann Reality is as cg you just want to know U are doing all possible. And it’s hard. #pancsm

Thu Sep 4 18:45:02 PDT 2014   ReplyRetweetFavorite

phidias51 @pancdoc Need to know about PNI, and cachexia, clinical trials, genetics. The need for tumor samples at various stgs in the disease. #pancsm

Thu Sep 4 18:45:22 PDT 2014   ReplyRetweetFavorite

amartmd Agree, this issue is big!!“@NJArellano: An important issue no less important : “ADDRESSING FINANCIAL AND LEGAL MATTERS” #PANCSM

Thu Sep 4 18:45:36 PDT 2014   ReplyRetweetFavorite

njarellano When dealing with a life-threatening illness you may need to put your financial matters in order #PANCSM

Thu Sep 4 18:46:07 PDT 2014   ReplyRetweetFavorite

zachweismann Looking at clinical trials, asking right ?s, supplements nutrients, exercise, exploring all options. Have to advocate constantly #pancsm

Thu Sep 4 18:46:20 PDT 2014   ReplyRetweetFavorite

pancsmchat OK so T3 in the last 15 min, what are the most important words of wisdom from patients/caregivers & docs/providers to pts/cgs #pancSM

Thu Sep 4 18:46:40 PDT 2014   ReplyRetweetFavorite

_alikaptan_ RT @PatientPower: More options than ever for those suffering from Pancreatic Cancer! @PanCan #pancsm http://t.co/Gn2ysQ66YO

Thu Sep 4 18:47:04 PDT 2014   ReplyRetweetFavorite

zachweismann Anyone want to collaborate on cg pancreatic cancer comprehensive guide? Think Is needed more than I’ve seen #pancsm

Thu Sep 4 18:47:27 PDT 2014   ReplyRetweetFavorite

pancsmchat Hi @AMartMD thx for joining #PancSM chat tonight

Thu Sep 4 18:47:27 PDT 2014   ReplyRetweetFavorite

phidias51 I’m surprised that we don’t make psychological care, an integral part of the care team just like pain mgmt, nursing, etc. #pancsm

Thu Sep 4 18:48:01 PDT 2014   ReplyRetweetFavorite

njarellano Having a financial plan may reduce some of the stress in the patient’s life and help you better cope #PANCSM

Thu Sep 4 18:48:06 PDT 2014   ReplyRetweetFavorite

nirajgusani This would be a great resource! RT @zachweismann: cg pancreatic cancer comprehensive guide -Is needed more than I’ve seen #pancsm

Thu Sep 4 18:48:16 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @phidias51: I’m surprised that we don’t make psychological care, an integral part of the care team just like pain mgmt, nursing, etc. #p

Thu Sep 4 18:48:27 PDT 2014   ReplyRetweetFavorite

tgeorgemd T3 TIPS: Live each day; LOVE; don’t sweat the small stuff; distance yourself from negativity; accept reality @PancSMChat #pancsm #cancer

Thu Sep 4 18:48:47 PDT 2014   ReplyRetweetFavorite

pancdoc @phidias51Agree. We have survivorship consultation at time of diagnosis with assessment of psychological needs #pancsm

Thu Sep 4 18:48:59 PDT 2014   ReplyRetweetFavorite

nirajgusani We try but resources are tight – we’ve been trying to hire a dedicated psych doc for 3 yrs @phidias51 #pancsm

Thu Sep 4 18:49:09 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @TGeorgeMD: T3 TIPS: Live each day; LOVE; don’t sweat the small stuff; distance yourself from negativity; accept reality @PancSMChat #pa

Thu Sep 4 18:49:25 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @pancdoc@phidias51Agree. We have survivorship consultation at time of diagnosis with assessment of psychological needs #pancsm

Thu Sep 4 18:49:28 PDT 2014   ReplyRetweetFavorite

nirajgusani Great tips @TGeorgeMD T3 TIPS: Live each day; LOVE; don’t sweat the small stuff; distance yourself from negativity; accept reality #pancsm

Thu Sep 4 18:50:02 PDT 2014   ReplyRetweetFavorite

phidias51 Ask the questions you want to ask of the patient. Don’t hold back. Resolve what needs to be resolved. Remember everything. #pancsm

Thu Sep 4 18:51:15 PDT 2014   ReplyRetweetFavorite

pancdoc T3- caregivers going thru this too so ok to emote #pancsm

Thu Sep 4 18:51:15 PDT 2014   ReplyRetweetFavorite

nirajgusani T3 I would add – No one way / path / treatment is right for everyone. Do what is right for you or your loved one #pancsm

Thu Sep 4 18:51:26 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @pancdoc: T3- caregivers going thru this too so ok to emote #pancsm

Thu Sep 4 18:51:43 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @phidias51: Ask the questions you want to ask of the patient. Don’t hold back. Resolve what needs to be resolved. Remember everything. #…

Thu Sep 4 18:51:46 PDT 2014   ReplyRetweetFavorite

zachweismann
  1. Stay in the present moment. 2. Assemble your team. 3. Love, keep hope. This is a disease that can be beaten & a lot of survivors #pancsm

Thu Sep 4 18:51:58 PDT 2014   ReplyRetweetFavorite

nirajgusani Yes @zachweismann Thx for reminder 1. Stay in the present 2. Assemble your team. 3. Love, keep hope. #pancsm

Thu Sep 4 18:52:44 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @zachweismann: 1. Stay in the present moment. 2. Assemble your team. 3. Love, keep hope. This is a disease that can be beaten & a lot of…

Thu Sep 4 18:52:57 PDT 2014   ReplyRetweetFavorite

nirajgusani Great message from @zachweismann #pancreaticcancer is a disease that can be beaten & a lot of #survivors #pancsm

Thu Sep 4 18:53:26 PDT 2014   ReplyRetweetFavorite

tgeorgemd RT @NirajGusani: Yes @zachweismann Thx for reminder 1. Stay in the present 2. Assemble your team. 3. Love, keep hope. #pancsm

Thu Sep 4 18:53:35 PDT 2014   ReplyRetweetFavorite

pancdoc T3- i encourage team to work in shifts and get their rest; tired families make bad decisions, just like tired doctors #pancsm

Thu Sep 4 18:53:51 PDT 2014   ReplyRetweetFavorite

pancdoc RT @NirajGusani Great message from @zachweismann #pancreaticcancer is a disease that can be beaten & a lot of #survivors #pancsm

Thu Sep 4 18:54:16 PDT 2014   ReplyRetweetFavorite

nirajgusani Yes but no cg work hour restrictions 🙂 @pancdoc: T3- encourage team to work in shifts and get their rest #pancsm

Thu Sep 4 18:54:42 PDT 2014   ReplyRetweetFavorite

phidias51 My impression is that we’re still not integrating research into the picture – molecular tumor boards, consistent epidemiology #pancsm

Thu Sep 4 18:54:44 PDT 2014   ReplyRetweetFavorite

pallonc RT @phidias51: I’m surprised that we don’t make psychological care, an integral part of the care team just like pain mgmt, nursing, etc. #p

Thu Sep 4 18:54:56 PDT 2014   ReplyRetweetFavorite

pancdoc @phidias51 Amen. not much research in non-cancer management of cancer patient #pancsm

Thu Sep 4 18:55:35 PDT 2014   ReplyRetweetFavorite

phidias51 … communicating genetic risk factors back to F1 relatives. #pancsm

Thu Sep 4 18:55:44 PDT 2014   ReplyRetweetFavorite

nirajgusani Prob not to the extent we can – an opportunity for improvement RT @phidias51: we’re still not integrating research into the picture #pancsm

Thu Sep 4 18:55:54 PDT 2014   ReplyRetweetFavorite

nirajgusani RT @pancdoc@phidias51 Amen. not much research in non-cancer management of cancer patient #pancsm

Thu Sep 4 18:56:19 PDT 2014   ReplyRetweetFavorite

zachweismann Yes improve genetictesting, supportive care services and early detection before metsastsis #pancsm

Thu Sep 4 18:56:25 PDT 2014   ReplyRetweetFavorite

pancdoc @phidias51 It is happening though. we have a drug in preclinical studies which reverses cachexia in mice with cancer #pancsm

Thu Sep 4 18:56:35 PDT 2014   ReplyRetweetFavorite

ctsinclair RT @phidias51: I’m surprised that we don’t make psychological care, an integral part of the care team just like pain mgmt, nursing, etc. #p

Thu Sep 4 18:57:19 PDT 2014   ReplyRetweetFavorite

nirajgusani And many of us are starting to study supportive oncology, Qual of Life, etc @pancdoc @phidias51 #pancsm #research

Thu Sep 4 18:57:26 PDT 2014   ReplyRetweetFavorite

klemansdl I prob give out too much advice to pt/cg but at the end of the day I hope they know our team cares…A LOT #pancsm

Thu Sep 4 18:58:04 PDT 2014   ReplyRetweetFavorite

tgeorgemd RT @NirajGusani: Great message from @zachweismann #pancreaticcancer is a disease that can be beaten & a lot of #survivors #pancsm

Thu Sep 4 18:58:04 PDT 2014   ReplyRetweetFavorite

pancdoc Getting close to the end of the hour. how about we revisit surgery recovery next month AND address chemo toxicities? #pancsm

Thu Sep 4 18:58:11 PDT 2014   ReplyRetweetFavorite

pancsmchat Wow – another great #PancSM chat is nearing the end. Thx so much to all the participants. Any final words? #PancSM

Thu Sep 4 18:58:16 PDT 2014   ReplyRetweetFavorite

njarellano In conclusion, all team members have the same goal :to offer services that provide the highest quality of life and extend survival #PANCSM

Thu Sep 4 18:58:41 PDT 2014   ReplyRetweetFavorite

nirajgusani Sounds good @pancdoc revisit surgery recovery next month AND address chemo toxicities? #pancsm

Thu Sep 4 18:58:54 PDT 2014   ReplyRetweetFavorite

phidias51 @pancdoc What’s the drug? Do you know the ctid for the trial? I’d like to see one for PNI as well. A cocktail might improve QOL. #pancsm

Thu Sep 4 18:58:57 PDT 2014   ReplyRetweetFavorite

nirajgusani Yes @NJArellano: all team members have the same goal :to offer services that provide the highest quality of life & extend survival #PANCSM

Thu Sep 4 18:59:26 PDT 2014   ReplyRetweetFavorite

zachweismann Thanks to all medical professionals who made themselves available. Can’t tell you how encouraging& appreciate. Utilizing tech4good #pancsm

Thu Sep 4 18:59:38 PDT 2014   ReplyRetweetFavorite

pancdoc @phidias51 no drug name yet; in-house production so far; hoping for phase 1 in next 1-2 years #pancsm

Thu Sep 4 18:59:50 PDT 2014   ReplyRetweetFavorite

 

Posted in Uncategorized | Leave a comment

August #PANCSM Chat: Pancreatic Cancer Research

nirajgusani RT @pancdoc: RT @PancSMChat Tonight’s #PANCSM Chat on #pancreaticcancer research begins in 15 minutes! Don’t miss it!

Thu Aug 7 17:59:47 PDT 2014 ReplyRetweetFavorite

pancsmchat Welcome to the second #PANCSM Chat! This month, #pancreaticcancer experts are joining us to talk about research in the field.

Thu Aug 7 18:00:03 PDT 2014 ReplyRetweetFavorite

nirajgusani RT @PancSMChat: Welcome to the second #PANCSM Chat! This month, #pancreaticcancer experts are joining us to talk about research in the fiel…

Thu Aug 7 18:00:30 PDT 2014 ReplyRetweetFavorite

pancsmchat Who’s joining us for today’s #PANCSM Chat?

Thu Aug 7 18:00:59 PDT 2014 ReplyRetweetFavorite

pancdoc Mark Bloomston; Surgical Oncologist from Ohio State @OSUCCC_James #pancsm

Thu Aug 7 18:01:38 PDT 2014 ReplyRetweetFavorite

nirajgusani .@PancSMChat Niraj Gusani, Surgical Oncologist specializing in Liver & Pancreas Surgery -Penn State Cancer Institute in Hershey, PA #PancSM

Thu Aug 7 18:02:09 PDT 2014 ReplyRetweetFavorite

nirajgusani Hey Mark – how are you? @pancdoc @OSUCCC_James #PancSM

Thu Aug 7 18:02:44 PDT 2014 ReplyRetweetFavorite

pancdoc @NirajGusani Hey Niraj. Doing great. How are things in PA? #pancsm

Thu Aug 7 18:03:37 PDT 2014 ReplyRetweetFavorite

nirajgusani Not bad … busy but that’s good! #pancsm

Thu Aug 7 18:04:35 PDT 2014 ReplyRetweetFavorite

mkatzmd hi all, Matthew Katz from MDACC here #PancSM

Thu Aug 7 18:04:38 PDT 2014 ReplyRetweetFavorite

pancsmchat Welcome, all! Please feel free to chime in with your questions for our experts as we progress through #PANCSM.

Thu Aug 7 18:04:50 PDT 2014 ReplyRetweetFavorite

pancsmchat Q1: What research has been conducted in the past 10 years to further pancreatic cancer treatment and outcomes? #PANCSM

Thu Aug 7 18:05:22 PDT 2014 ReplyRetweetFavorite

pancdoc @mkatzmd Hey Matt. glad you could make it #pancsm

Thu Aug 7 18:05:44 PDT 2014 ReplyRetweetFavorite

njarellano .@pancsmchat Hi everyone #PancSM

Thu Aug 7 18:05:51 PDT 2014 ReplyRetweetFavorite

nirajgusani Q1 a lot of great progress in surgical & medical treatment of pancreatic cancer, including new drug regimens & safer surgery #PancSM

Thu Aug 7 18:06:45 PDT 2014 ReplyRetweetFavorite

nirajgusani Hi Nelson – thanks for joining us! @NJArellano @pancsmchat #PancSM

Thu Aug 7 18:07:18 PDT 2014 ReplyRetweetFavorite

pancdoc @PancSMChat A1: new chemo regimens show never-before-seen improvements in survival compared to previous #pancsm

Thu Aug 7 18:07:30 PDT 2014 ReplyRetweetFavorite

nirajgusani RT @pancdoc: @PancSMChat A1: new chemo regimens show never-before-seen improvements in survival compared to previous #pancsm

Thu Aug 7 18:07:53 PDT 2014 ReplyRetweetFavorite

njarellano @nirajgusani @pancsmchat Hi Niraj. Thank you #PancSM

Thu Aug 7 18:08:00 PDT 2014 ReplyRetweetFavorite

njarellano RT @NirajGusani: Hi Nelson – thanks for joining us! @NJArellano @pancsmchat #PancSM

Thu Aug 7 18:08:20 PDT 2014 ReplyRetweetFavorite

nirajgusani Thx for retweet @Aiims1742 hope you can join us now for #PancSM chat on research!

Thu Aug 7 18:09:43 PDT 2014 ReplyRetweetFavorite

njarellano @pancsmchat @pancdoc @NirajGusani “Pancreatic Cancer Survival Rates Haven’t Improved In Four Decades”. This is alarming #PANCSM

Thu Aug 7 18:10:12 PDT 2014 ReplyRetweetFavorite

pancdoc @NJArellano @pancsmchat @NirajGusani True that cure rates have not improved but we are commonly seeing people liver longer than evr#pancsm

Thu Aug 7 18:11:07 PDT 2014 ReplyRetweetFavorite

nirajgusani True – progress is slow – but I think we are making some… Still one of the most deadly cancers though @NJArellano @pancdoc #PancSM

Thu Aug 7 18:11:17 PDT 2014 ReplyRetweetFavorite

njarellano RT @pancdoc: @NJArellano @pancsmchat @NirajGusani True that cure rates have not improved but we are commonly seeing people liver longer th…

Thu Aug 7 18:11:39 PDT 2014 ReplyRetweetFavorite

mkatzmd Do you guys have any trials going you are particularly excited about? #pancsm

Thu Aug 7 18:11:50 PDT 2014 ReplyRetweetFavorite

njarellano RT @NirajGusani: True – progress is slow – but I think we are making some… Still one of the most deadly cancers though @NJArellano @pancd

Thu Aug 7 18:11:52 PDT 2014 ReplyRetweetFavorite

pancsmchat Q2: What research is currently underway to give pancreatic cancer patients more hope for positive outcomes? #PANCSM

Thu Aug 7 18:12:08 PDT 2014 ReplyRetweetFavorite

nirajgusani Also getting better (slowly) at early detection and getting more people to surgery & chemo @pancdoc @NJArellano @pancsmchat #PancSM

Thu Aug 7 18:12:11 PDT 2014 ReplyRetweetFavorite

njarellano RT @PancSMChat: Q2: What research is currently underway to give pancreatic cancer patients more hope for positive outcomes? #PANCSM

Thu Aug 7 18:12:43 PDT 2014 ReplyRetweetFavorite

pancdoc @mkatzmd we are launching a trial using modern chemo (FOLFIRINOX) plus a virus prior to surgery #pancsm

Thu Aug 7 18:12:51 PDT 2014 ReplyRetweetFavorite

nirajgusani A2 Tons of great research (but of course we need more) – #pancreaticcancer is underfunded compared to other cancers #PancSM

Thu Aug 7 18:13:18 PDT 2014 ReplyRetweetFavorite

njarellano @pancsmchat Great question #PANCSM

Thu Aug 7 18:13:20 PDT 2014 ReplyRetweetFavorite

njarellano RT @NirajGusani: Also getting better (slowly) at early detection and getting more people to surgery & chemo @pancdoc @NJArellano@pancsmcha

Thu Aug 7 18:14:18 PDT 2014 ReplyRetweetFavorite

nirajgusani I am very excited about a trial we are doing for increasing Physican Activity in Cancer Surgery patients @pancdoc @mkatzmd #PancSM

Thu Aug 7 18:14:29 PDT 2014 ReplyRetweetFavorite

nirajgusani How about you @mkatzmd ? What about research at your institution? #PancSM

Thu Aug 7 18:15:32 PDT 2014 ReplyRetweetFavorite

pancdoc @NirajGusani @mkatzmd what do you mean by physician activity? #pancsm

Thu Aug 7 18:15:34 PDT 2014 ReplyRetweetFavorite

nirajgusani Monitoring PA using activity monitors and randomizing to just this vs a tablet based motivational intervention @pancdoc @mkatzmd #PancSM

Thu Aug 7 18:16:28 PDT 2014 ReplyRetweetFavorite

mkatzmd @nirajgusani that is outstanding. love it. #pancsm

Thu Aug 7 18:17:06 PDT 2014 ReplyRetweetFavorite

nirajgusani Hope to increase periop standing and walking to improve outcomes @pancdoc @mkatzmd #PancSM http://t.co/EK6jlEW9mY

Thu Aug 7 18:17:29 PDT 2014 ReplyRetweetFavorite

mkatzmd We are interested in preoperative approaches… always trying to improve surgical outcomes #pancsm

Thu Aug 7 18:18:18 PDT 2014 ReplyRetweetFavorite

nirajgusani Our patients can’t run marathons, but I believe small changes in their conditioning will yield results… @pancdoc @mkatzmd #pancSM

Thu Aug 7 18:18:32 PDT 2014 ReplyRetweetFavorite

pancdoc @NirajGusani @mkatzmd I think there is something to that. We need to focus on recovery as well as cancer treatement #pancsm

Thu Aug 7 18:18:36 PDT 2014 ReplyRetweetFavorite

njarellano Research focusing in diagnosis vs treatment. What is the goal in research ? #PANCSM @NirajGusani @pancdoc @PancSMChat

Thu Aug 7 18:18:54 PDT 2014 ReplyRetweetFavorite

nirajgusani Yes! @pancdoc @mkatzmd #pancsm

Thu Aug 7 18:19:18 PDT 2014 ReplyRetweetFavorite

pancdoc @NJArellano @NirajGusani @PancSMChat More efficient diagnosis, more effect therapy, and MORE CURES! #pancsm

Thu Aug 7 18:19:45 PDT 2014 ReplyRetweetFavorite

nirajgusani Many different aspects of research – need new treatment strategies, of course, @NJArellano @pancdoc @PancSMChat #PancSM

Thu Aug 7 18:20:34 PDT 2014 ReplyRetweetFavorite

njarellano @pancdoc @nirajgusani @pancsmchat What is the major focus of much research? #PANCSM

Thu Aug 7 18:20:39 PDT 2014 ReplyRetweetFavorite

njarellano RT @NirajGusani: Many different aspects of research – need new treatment strategies, of course, @NJArellano @pancdoc @PancSMChat #PancSM

Thu Aug 7 18:20:55 PDT 2014 ReplyRetweetFavorite

nirajgusani but better understanding of genetics or risk factors can help us in early detection @NJArellano @pancdoc @PancSMChat #Pancsm

Thu Aug 7 18:21:03 PDT 2014 ReplyRetweetFavorite

njarellano @nirajgusani @pancdoc @pancsmchat I agree with that. I think is the best way #PANCSM

Thu Aug 7 18:21:43 PDT 2014 ReplyRetweetFavorite

nirajgusani Also interested in Survivorship phase, after diagnosis & treatment – many long-term effects even if cured @NJArellano @pancdoc #PancSM

Thu Aug 7 18:22:28 PDT 2014 ReplyRetweetFavorite

njarellano @nirajgusani @pancdoc @pancsmchat Inherited changes in genes related to pancreatic cancer BRCA2, p16, HNPCC can increase the risk#PANCSM

Thu Aug 7 18:22:41 PDT 2014 ReplyRetweetFavorite

pancdoc What’s the most common misconception about research? #pancsm

Thu Aug 7 18:23:40 PDT 2014 ReplyRetweetFavorite

nirajgusani Yes – but these comprise a small minority of patients – most #PancreaticCancer is not hereditary @NJArellano @pancdoc #PancSM

Thu Aug 7 18:23:53 PDT 2014 ReplyRetweetFavorite

nirajgusani We are getting better – but still much room to improve @mkatzmd #PancSM

Thu Aug 7 18:24:45 PDT 2014 ReplyRetweetFavorite

nirajgusani Misconception: there is a simple “cure” for all #PancreaticCancer – magic bullet -Cancer is much smarter than that – will take work #PancSm

Thu Aug 7 18:27:20 PDT 2014 ReplyRetweetFavorite

nirajgusani Do you think this trend: “Pancreatic cancer second most deadly by 2030” can be reversed? #pancSM http://t.co/iTBBuECnaS

Thu Aug 7 18:29:59 PDT 2014 ReplyRetweetFavorite

pancdoc @NirajGusani Yes and no. More people being diagnosed so more total deaths but more cures too #pancsm

Thu Aug 7 18:31:08 PDT 2014 ReplyRetweetFavorite

mkatzmd @NirajGusani I think it can, but it will take a lot of work. Luckily there is a growing interest by researchers #pancsm

Thu Aug 7 18:31:13 PDT 2014 ReplyRetweetFavorite

nirajgusani RT @NJArellano: @nirajgusani @mkatzmd Creating a “risk stratification tool” could be used in primary care practice #pancsm

Thu Aug 7 18:31:35 PDT 2014 ReplyRetweetFavorite

mkatzmd A lot of that is due to aging of population too… #pancsm

Thu Aug 7 18:31:50 PDT 2014 ReplyRetweetFavorite

nirajgusani RT @NJArellano: @nirajgusani @mkatzmd to identify individuals who should undergo screening for pancreatic cancer with u/s or MRI #PancSM

Thu Aug 7 18:32:11 PDT 2014 ReplyRetweetFavorite

pancdoc @mkatzmd Have a whipple next week in 38 yo. seems like a lot of young people showing up too. #pancsm

Thu Aug 7 18:32:45 PDT 2014 ReplyRetweetFavorite

nirajgusani Yes – not sure what to think – too many young patients! @pancdoc @mkatzmd #PancSM

Thu Aug 7 18:33:21 PDT 2014 ReplyRetweetFavorite

mkatzmd Saw a 41 year old this week as well. Tragic. #pancsm

Thu Aug 7 18:33:59 PDT 2014 ReplyRetweetFavorite

mkatzmd But the increase in cases by 2030 is partly attributed to demographic changes (pop getting older)… not disease getting worse #pancsm

Thu Aug 7 18:34:47 PDT 2014 ReplyRetweetFavorite

pancdoc Should everyone with treatable #pancreaticcancer be in a clinical trial? #pancsm

Thu Aug 7 18:34:52 PDT 2014 ReplyRetweetFavorite

pancsmchat Q3: What are clinical trials and why should pancreatic cancer patients participate in them? #PANCSM

Thu Aug 7 18:35:00 PDT 2014 ReplyRetweetFavorite

mkatzmd @pancdoc That’s the only way we’re going to make progress Mark #pancsm

Thu Aug 7 18:35:22 PDT 2014 ReplyRetweetFavorite

nirajgusani Agree – should consider some sort of trial for everyone RT @mkatzmd: @pancdoc That’s the only way we’re going to make progress Mark #pancsm

Thu Aug 7 18:36:19 PDT 2014 ReplyRetweetFavorite

pancdoc @PancSMChat A3: cancer clinical trials always include the best known therapy +/- something new and exciting #pancsm

Thu Aug 7 18:36:32 PDT 2014 ReplyRetweetFavorite

nirajgusani May also test new combinations. Many include biologic studies and genetic studies as well @pancdoc #PancSM

Thu Aug 7 18:37:28 PDT 2014 ReplyRetweetFavorite

mkatzmd @PancSMChat Not always a “treatment” the way patients may think of it… stuff Niraj is doing with physical activity case in point #pancsm

Thu Aug 7 18:37:57 PDT 2014 ReplyRetweetFavorite

nirajgusani RT @mkatzmd: @PancSMChat Not always a “treatment” the way patients may think of it… stuff Niraj is doing with physical activity case in p…

Thu Aug 7 18:38:08 PDT 2014 ReplyRetweetFavorite

nirajgusani And can at least look at Quality of Life (QOL) in all patients even if not testing new drugs / interventions @mkatzmd #PancSM

Thu Aug 7 18:38:53 PDT 2014 ReplyRetweetFavorite

pancdoc @NirajGusani @mkatzmd QOL trials equally as important as treatment trials for this disease #pancsm

Thu Aug 7 18:39:36 PDT 2014 ReplyRetweetFavorite

mkatzmd @NirajGusani Given admittedly slow progress in improving survival, focus on QOL is critical! #pancsm

Thu Aug 7 18:39:51 PDT 2014 ReplyRetweetFavorite

bnwomeh Split screen: POTUS on Iraq vs. @NirajGusani holding fort on #pancsm 🙂

Thu Aug 7 18:40:27 PDT 2014 ReplyRetweetFavorite

nirajgusani In any disease, but especially those with sometimes poor prognosis @pancdoc @mkatzmd #PancSM Often focus is Quality not Quantity of Life

Thu Aug 7 18:40:49 PDT 2014 ReplyRetweetFavorite

nirajgusani Join us @bnwomeh …. #PancSM

Thu Aug 7 18:41:22 PDT 2014 ReplyRetweetFavorite

mkatzmd Mark can you tell us a bit about virus preop trial you’re starting up? #pancsm

Thu Aug 7 18:41:25 PDT 2014 ReplyRetweetFavorite

pancdoc @mkatzmd FOLFIRINOX + chemoradiation +/- injected adenovirus as gene mediated immune therapy #pancsm

Thu Aug 7 18:42:36 PDT 2014 ReplyRetweetFavorite

nirajgusani What does the virus carry? @pancdoc @mkatzmd #PancSM Spent 2 yrs in HSV gene therapy lab back in the day!

Thu Aug 7 18:43:21 PDT 2014 ReplyRetweetFavorite

njarellano @pancsmchat @NirajGusani Yes in poor prognosis cases the goal is to improve QOL #PANCSM

Thu Aug 7 18:43:25 PDT 2014 ReplyRetweetFavorite

subatomicdoc @NirajGusani @pancdoc @mkatzmd Good evening #PancSM friends. Sorry to be dropping in late. Matt Katz, rad onc in MA here.

Thu Aug 7 18:44:19 PDT 2014 ReplyRetweetFavorite

pancdoc @NirajGusani @mkatzmd Very similar Niraj. Carries herpes thymidine kinase. After injection, treat herpes gene with valacyclovir #pancsm

Thu Aug 7 18:44:41 PDT 2014 ReplyRetweetFavorite

nirajgusani Hi Matt – can never have enough MKatz’s on #PancSM @subatomicdoc @pancdoc @mkatzmd

Thu Aug 7 18:44:45 PDT 2014 ReplyRetweetFavorite

mkatzmd Hi “The other Matt Katz”! #pancsm

Thu Aug 7 18:44:47 PDT 2014 ReplyRetweetFavorite

pancsmchat Q4: How do cancer centers and experts across the country collaborate to further #pancreaticcancer research? #PANCSM

Thu Aug 7 18:45:15 PDT 2014 ReplyRetweetFavorite

pancdoc @subatomicdoc @NirajGusani @mkatzmd Welcome Matt! #pancsm

Thu Aug 7 18:45:15 PDT 2014 ReplyRetweetFavorite

nirajgusani Nice – EUS injection after ChemoRT? @pancdoc @mkatzmd #PancSM

Thu Aug 7 18:45:26 PDT 2014 ReplyRetweetFavorite

pancdoc @NirajGusani @mkatzmd EUS injection between during chemo, beginning of radiation, and intraop #pancsm

Thu Aug 7 18:46:02 PDT 2014 ReplyRetweetFavorite

mkatzmd yes great stuff Mark. just your site or multi-institutional? #pancsm

Thu Aug 7 18:46:19 PDT 2014 ReplyRetweetFavorite

subatomicdoc @pancdoc @NirajGusani @mkatzmd Thanks, Mark! #PancSM

Thu Aug 7 18:47:08 PDT 2014 ReplyRetweetFavorite

nirajgusani A4 great question – many collaboratives for clin. trials exist. #PancSM

Thu Aug 7 18:47:13 PDT 2014 ReplyRetweetFavorite

subatomicdoc RT @PancSMChat: Q4: How do cancer centers and experts across the country collaborate to further #pancreaticcancer research? #PANCSM

Thu Aug 7 18:47:15 PDT 2014 ReplyRetweetFavorite

pancdoc @subatomicdoc @NirajGusani @mkatzmd Our site plus the “NIH equivalent” in Mexico #pancsm

Thu Aug 7 18:47:32 PDT 2014 ReplyRetweetFavorite

nirajgusani Plus in addition to our own trials, most Cancer Centers will help pts find other trials of interest. #PancSM

Thu Aug 7 18:47:52 PDT 2014 ReplyRetweetFavorite

pancdoc No institution keeps a secret. If we have a new discovery we shout it from the rooftops #pancsm

Thu Aug 7 18:48:50 PDT 2014 ReplyRetweetFavorite

nirajgusani Still much room for more multi-institutional collaborations, esp for intervention trials #PancSM

Thu Aug 7 18:49:03 PDT 2014 ReplyRetweetFavorite

mkatzmd Cooperative group trials also provide great opportunities for collaboration. #pancsm

Thu Aug 7 18:49:12 PDT 2014 ReplyRetweetFavorite

mkatzmd I think we need more of them. #pancsm

Thu Aug 7 18:49:30 PDT 2014 ReplyRetweetFavorite

pancdoc We need a national repository of patient tumor tissue and data #pancsm

Thu Aug 7 18:49:44 PDT 2014 ReplyRetweetFavorite

mkatzmd I thought PanCan was organizing something like that. Anybody know status? #pancsm

Thu Aug 7 18:50:09 PDT 2014 ReplyRetweetFavorite

nirajgusani Already seeing surgical collaborative groups for running trials & looking at outcomes – impr. over old days when each did their own #PancSM

Thu Aug 7 18:50:46 PDT 2014 ReplyRetweetFavorite

pancdoc @mkatzmd It takes lots of money and oversight #pancsm

Thu Aug 7 18:50:49 PDT 2014 ReplyRetweetFavorite

nirajgusani RT @pancdoc: We need a national repository of patient tumor tissue and data #pancsm

Thu Aug 7 18:51:15 PDT 2014 ReplyRetweetFavorite

subatomicdoc What are the rate limiting steps to doing it? RT @pancdoc: We need a national repository of patient tumor tissue and data #pancsm

Thu Aug 7 18:51:20 PDT 2014 ReplyRetweetFavorite

kentbottles RT @pancdoc: We need a national repository of patient tumor tissue and data #pancsm

Thu Aug 7 18:51:43 PDT 2014 ReplyRetweetFavorite

pancdoc @NirajGusani I think the younger generations of surgeons are eager to share data, good and bad. No more silos! #pancsm

Thu Aug 7 18:52:12 PDT 2014 ReplyRetweetFavorite

pancdoc @subatomicdoc Lots of concerns about ownership, privacy, etc #pancsm

Thu Aug 7 18:52:50 PDT 2014 ReplyRetweetFavorite

subatomicdoc @NirajGusani @pancdoc @mkatzmd LOL. Good company here that’s for sure! #PancSM

Thu Aug 7 18:52:51 PDT 2014 ReplyRetweetFavorite

nirajgusani And $$$ to store, analyze, report data on specimens @pancdoc @subatomicdoc #pancsm

Thu Aug 7 18:54:20 PDT 2014 ReplyRetweetFavorite

pancsmchat Are there any additional questions before we wrap up this month’s #PANCSM Chat?

Thu Aug 7 18:54:59 PDT 2014 ReplyRetweetFavorite

subatomicdoc @pancdoc @NirajGusani Maybe the challenges with funding will spur innovative collaborative research models #PancSM

Thu Aug 7 18:55:02 PDT 2014 ReplyRetweetFavorite

pancdoc @NirajGusani @subatomicdoc We are going to have to rely on industry because the government cannot fund such endeavors #pancsm

Thu Aug 7 18:55:10 PDT 2014 ReplyRetweetFavorite

pancdoc Perhaps next month we should talk about the roles of caregivers and managing the stressors of #pancreaticcancer #pancsm

Thu Aug 7 18:57:29 PDT 2014 ReplyRetweetFavorite

nirajgusani Can’t stress enough the importance of #PancreaticCancer research in improving outcomes and the lives of our patients! #PancSM

Thu Aug 7 18:57:49 PDT 2014 ReplyRetweetFavorite

nirajgusani I’m in… @pancdoc #PancSM

Thu Aug 7 18:58:19 PDT 2014 ReplyRetweetFavorite

pancdoc AMEN! RT @NirajGusani Can’t stress enough the importance of research in improving outcomes and the lives of our patients! #PancSM

Thu Aug 7 18:58:58 PDT 2014 ReplyRetweetFavorite

subatomicdoc @pancdoc Sounds like a great topic! #pancsm

Thu Aug 7 18:59:18 PDT 2014 ReplyRetweetFavorite

pancdoc Thank you all for a great chat! #pancsm

Thu Aug 7 18:59:20 PDT 2014 ReplyRetweetFavorite

mkatzmd See you all then. #pancsm

Thu Aug 7 18:59:33 PDT 2014 ReplyRetweetFavorite

pancsmchat Thank you all so much for joining us tonight! See you for next month’s #PANCSM Chat on September 4!

Thu Aug 7 18:59:34 PDT 2014 ReplyRetweetFavorite

nirajgusani Yep – thanks everyone and hope you all have a great night! #PancSM

Thu Aug 7 18:59:51 PDT 2014 ReplyRetweetFavorite

pancdoc Good night. Keep up the fight! #pancsm

Thu Aug 7 19:00:04 PDT 2014 ReplyRetweetFavorite

mkatzmd
  1. #pancsm

Thu Aug 7 19:00:16 PDT 2014 ReplyRetweetFavorite

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June #PANCSM Chat: Recovering from Pancreatic Surgery

pancsmchat #PancSM starts in 15 mins! Join @NirajGusani, @pancdoc, @mkatzmd and @DianeReidyLagun to talk about recovering from pancreatic surgery.Thu Jun 5 17:45:04 PDT 2014 ReplyRetweetFavorite
nirajgusani RT @PancSMChat: #PancSM starts in 15 mins! Join @NirajGusani, @pancdoc, @mkatzmd and @DianeReidyLagun to talk about recovering from pancrea…Thu Jun 5 17:51:26 PDT 2014 ReplyRetweetFavorite
pancdoc RT @PancSMChat: #PancSM starts in 15 mins! Join @NirajGusani, @pancdoc, @mkatzmd and @DianeReidyLagun to talk about recovering from pancrea…Thu Jun 5 17:53:13 PDT 2014 ReplyRetweetFavorite
nirajgusani Ready to go! Excited for our 1st chat! MT @PancSMChat: #PancSM starts in 5 mins! #PancreaticCancerThu Jun 5 17:54:44 PDT 2014 ReplyRetweetFavorite
pancdoc RT @PanCANColumbus: Join @pancdoc from @OSUCCC_James and doctors from around the country for the 1st #PANCSM Tweet Chat TONIGHT 9pm est. ht…Thu Jun 5 17:54:51 PDT 2014 ReplyRetweetFavorite
mkatzmd Ready to go from Houston! #pancsmThu Jun 5 17:57:27 PDT 2014 ReplyRetweetFavorite
pancsmchat Welcome to the inaugural #PancSM Chat! This month, #pancreaticcancer experts are joining us to talk about recovering from surgery.Thu Jun 5 18:00:01 PDT 2014 ReplyRetweetFavorite
pancsmchat Who’s joining us for today’s #PANCSM Chat?Thu Jun 5 18:00:22 PDT 2014 ReplyRetweetFavorite
subatomicdoc Matt Katz (the other one) from Lowell MA. Exciting! RT @PancSMChat: Who’s joining us for today’s #PANCSM Chat?Thu Jun 5 18:01:33 PDT 2014 ReplyRetweetFavorite
ambrygenetics We are! RT “@PancSMChat: Who’s joining us for today’s #PANCSM Chat?”Thu Jun 5 18:01:46 PDT 2014 ReplyRetweetFavorite
nirajgusani .@PancSMChat Niraj Gusani, MD, surgical oncologist specializing in pancreatic and liver surgery – from Penn State Cancer Insititute #PancSMThu Jun 5 18:01:58 PDT 2014 ReplyRetweetFavorite
pancsmchat Thanks for joining us, @subatomicdoc & @AmbryGenetics! #pancsmThu Jun 5 18:02:34 PDT 2014 ReplyRetweetFavorite
pancdoc .@PancSMChat Mark Bloomston, MD from Ohio State. Surgical Oncologist #pancsmThu Jun 5 18:02:42 PDT 2014 ReplyRetweetFavorite
mkatzmd Matthew Katz, Pancreatic surgical oncologist from the MD Anderson Cancer Center #pancsmThu Jun 5 18:02:46 PDT 2014 ReplyRetweetFavorite
nirajgusani Hi Matt @subatomicdoc @PancSMChat – you did a great job getting the word out about this chat at #ASCO14 #PancSMThu Jun 5 18:03:16 PDT 2014 ReplyRetweetFavorite
nirajgusani RT @PancSMChat: Thanks for joining us, @subatomicdoc & @AmbryGenetics! #pancsmThu Jun 5 18:04:01 PDT 2014 ReplyRetweetFavorite
subatomicdoc @PancSMChat @AmbryGenetics My pleasure. I’m a radiation oncologist and always interested to learn new things re: pancreatic cancer #pancsmThu Jun 5 18:04:26 PDT 2014 ReplyRetweetFavorite
pancdoc Lots of mentions. Hopefully we’ll help some patients/friends/family in their fight against #pancreaticcancer #pancsmThu Jun 5 18:04:53 PDT 2014 ReplyRetweetFavorite
pancan Get 1-on-1 support, speak with a Patient and Liaison Services (PALS) Associate. Call 877-272-6226 or email pals@pancan.org #pancsmThu Jun 5 18:05:09 PDT 2014 ReplyRetweetFavorite
subatomicdoc @NirajGusani @PancSMChat Sure thing! Great time to start a new disease-oriented chat to help doctors, patients, caregivers #PancSMThu Jun 5 18:05:13 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @pancdoc: Lots of mentions. Hopefully we’ll help some patients/friends/family in their fight against #pancreaticcancer #pancsmThu Jun 5 18:05:36 PDT 2014 ReplyRetweetFavorite
nirajgusani Yes and find a new venue to help educate and interact about this challenging disease @pancdoc #PancSMThu Jun 5 18:05:39 PDT 2014 ReplyRetweetFavorite
pancsmchat Welcome, all! Let’s get started with our questions for the night! #pancsmThu Jun 5 18:06:17 PDT 2014 ReplyRetweetFavorite
pancsmchat Q1: For starters, why do cancer patients undergo pancreatic surgery? #PANCSMThu Jun 5 18:06:47 PDT 2014 ReplyRetweetFavorite
docbkw RT @NirajGusani: Celebrating our #PancreaticCancer #Survivors@PennStHershey Cancer Institute #survivorship #NCSD2014http://t.co/LRpwkOU…Thu Jun 5 18:07:01 PDT 2014 ReplyRetweetFavorite
nirajgusani Would love to hear from patients, patient advocates, researchers, providers, and any others interested in #PancreaticCancer #PancSMThu Jun 5 18:07:12 PDT 2014 ReplyRetweetFavorite
subatomicdoc Important question RT @PancSMChat: Q1: For starters, why do cancer patients undergo pancreatic surgery? #PANCSMThu Jun 5 18:07:39 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @PancSMChat: Q1: For starters, why do cancer patients undergo pancreatic surgery? #PANCSMThu Jun 5 18:07:45 PDT 2014 ReplyRetweetFavorite
osuccc_james Join the discussion! MT @pancdoc: Hopefully we’ll help some patients/friends/family in their fight against #pancreaticcancer. #pancsmThu Jun 5 18:07:46 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @NirajGusani: Would love to hear from patients, patient advocates, researchers, providers, and any others interested in #PancreaticCanceThu Jun 5 18:07:56 PDT 2014 ReplyRetweetFavorite
nirajgusani Surgery provides the only chance for cure for @PancreaticCancer , for starters… @PancSMChat #PancSMThu Jun 5 18:07:56 PDT 2014 ReplyRetweetFavorite
mkatzmd @PancSMChat Pancreatic surgery is performed for a variety of diseases of the pancreas, mostly pancreatic cancer but also others. #pancsmThu Jun 5 18:08:07 PDT 2014 ReplyRetweetFavorite
pancdoc .@PancSMChat A1:the number one reason is hope for cure #pancsmThu Jun 5 18:08:18 PDT 2014 ReplyRetweetFavorite
nirajgusani RT @pancdoc: .@PancSMChat A1:the number one reason is hope for cure #pancsmThu Jun 5 18:08:30 PDT 2014 ReplyRetweetFavorite
pancsmchat MT @mkatzmd Pancreatic surgery is performed for a variety of diseases of the pancreas, mostly pancreatic cancer but also others. #pancsmThu Jun 5 18:08:36 PDT 2014 ReplyRetweetFavorite
nirajgusani Surgery provides the only chance for cure for #PancreaticCancer , for starters… @PancSMChat #PancSMThu Jun 5 18:08:50 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @NirajGusani: Surgery provides the only chance for cure for @PancreaticCancer , for starters… @PancSMChat #PancSMThu Jun 5 18:09:10 PDT 2014 ReplyRetweetFavorite
pancsmchat MT @pancdoc: A1: the number one reason for pancreatic surgery is hope for cure #pancsmThu Jun 5 18:09:12 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @mkatzmd: @PancSMChat Pancreatic surgery is performed for a variety of diseases of the pancreas, mostly pancreatic cancer but also other…Thu Jun 5 18:09:12 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @pancdoc: .@PancSMChat A1:the number one reason is hope for cure #pancsmThu Jun 5 18:09:18 PDT 2014 ReplyRetweetFavorite
pancsmchat MT @NirajGusani: Surgery provides the only chance for cure for #PancreaticCancer. #PancSMThu Jun 5 18:09:34 PDT 2014 ReplyRetweetFavorite
njarellano Hi everyone ! #PancSM Happy to learn and contributeThu Jun 5 18:09:34 PDT 2014 ReplyRetweetFavorite
pancsmchat @NJArellano Welcome Dr. Arellano! Thanks for joining us! #pancsmThu Jun 5 18:10:01 PDT 2014 ReplyRetweetFavorite
nirajgusani Surgery also can relieve bile duct obstruction often seen with pancreatic diseases which results in jaundice @PancSMChat @pancdoc #PancSMThu Jun 5 18:10:20 PDT 2014 ReplyRetweetFavorite
dianereidylagun @PancSMChat Hi all getting on late. this is diane reidy-lagunes yes pancreas surgery is usually for a cancer that we want cured. #PANCSMThu Jun 5 18:10:39 PDT 2014 ReplyRetweetFavorite
pancsmchat .@mkatzmd What other conditions may patients undergo pancreatic surgery to treat? #pancsmThu Jun 5 18:10:50 PDT 2014 ReplyRetweetFavorite
subatomicdoc RT @PancSMChat: MT @pancdoc: A1: the number one reason for pancreatic surgery is hope for cure #pancsmThu Jun 5 18:10:56 PDT 2014 ReplyRetweetFavorite
nirajgusani .@NJArellano welcome to #PancSM – would love your perspectiveThu Jun 5 18:11:09 PDT 2014 ReplyRetweetFavorite
njarellano RT @PancSMChat: @NJArellano Welcome Dr. Arellano! Thanks for joining us! #pancsmThu Jun 5 18:11:35 PDT 2014 ReplyRetweetFavorite
pancdoc @DianeReidyLagun @PancSMChat Glad you made it Diane. As an Oncologist, how do you view the role of pancreatic surgery? #pancsmThu Jun 5 18:11:36 PDT 2014 ReplyRetweetFavorite
mkatzmd others include neuroendocrine tumors, bile duct cancers, duodenal cancers… but pancreatic cancer the most common #pancsmThu Jun 5 18:11:38 PDT 2014 ReplyRetweetFavorite
pancsmchat .@DianeReidyLagun Welcome! Any other reasons for choosing surgery? Can it improve quality of life if there’s no hope for a cure? #pancsmThu Jun 5 18:11:58 PDT 2014 ReplyRetweetFavorite
njarellano @NirajGusani Thank you #pancsmThu Jun 5 18:12:19 PDT 2014 ReplyRetweetFavorite
pancdoc Seems to me that as surgery gets safer and chemo/radiation get better, more people are getting hope for cure #pancsmThu Jun 5 18:12:36 PDT 2014 ReplyRetweetFavorite
subatomicdoc @DianeReidyLagun @PancSMChat Hi Diane! If you get a chance, please give my best to Karyn Goodman – she’s the best 🙂 #pancsmThu Jun 5 18:12:42 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @PancSMChat: .@DianeReidyLagun Welcome! Any other reasons for choosing surgery? Can it improve quality of life if there’s no hope for a …Thu Jun 5 18:12:45 PDT 2014 ReplyRetweetFavorite
pancsmchat MT @mkatzmd: Others reasons for pancreatic surgery include neuroendocrine tumors, bile duct cancers, duodenal cancers #pancsmThu Jun 5 18:12:48 PDT 2014 ReplyRetweetFavorite
nirajgusani .@mkatzmd and benign or premalignant diseases like pancreatic cysts and pancreatitis #PancSMThu Jun 5 18:12:48 PDT 2014 ReplyRetweetFavorite
dianereidylagun @dianreidylagun hi all-getting on late. pancreas surgery is performed to cure cancers of the pancreas. #pancsmThu Jun 5 18:13:15 PDT 2014 ReplyRetweetFavorite
pancsmchat MT @NirajGusani: Benign or premalignant diseases like pancreatic cysts and pancreatitis also treated with pancreatic surgery #PancSMThu Jun 5 18:13:16 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @PancSMChat: MT @mkatzmd: Others reasons for pancreatic surgery include neuroendocrine tumors, bile duct cancers, duodenal cancers#pancThu Jun 5 18:13:38 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @NirajGusani: .@mkatzmd and benign or premalignant diseases like pancreatic cysts and pancreatitis #PancSMThu Jun 5 18:13:42 PDT 2014 ReplyRetweetFavorite
pancsmchat Great news RT @pancdoc: Seems to me that as surgery gets safer and chemo/radiation get better, more people are getting hope for cure #pancsmThu Jun 5 18:13:50 PDT 2014 ReplyRetweetFavorite
mkatzmd Definitely can help with symptoms of pancreas cancer as well as cure- symptoms like jaundice, inability to eat, etc. #pancsmThu Jun 5 18:14:03 PDT 2014 ReplyRetweetFavorite
pancsmchat MT @mkatzmd: Surgery can help with symptoms of pancreas cancer as well as cure – symptoms like jaundice, inability to eat, etc. #pancsmThu Jun 5 18:14:23 PDT 2014 ReplyRetweetFavorite
nirajgusani @pancdoc combined modalities (surgery plus chemo +/- radiation) are offering more and more hope as drugs get better & surgery safer #PancSMThu Jun 5 18:14:47 PDT 2014 ReplyRetweetFavorite
ambrygenetics Great news! “@pancdoc: Seems to me that as surgery gets safer and chemo/radiation get better, more people are getting hope for cure #pancsmThu Jun 5 18:15:09 PDT 2014 ReplyRetweetFavorite
pancsmchat MT @NirajGusani: combined modalities (surgery plus chemo +/- radiation) are offering more hope as drugs get better & surgery safer #PancSMThu Jun 5 18:15:10 PDT 2014 ReplyRetweetFavorite
njarellano Stop smoking, stop drinking, follows a nutritious diet, seek support after surgical procedure #pancsmThu Jun 5 18:15:27 PDT 2014 ReplyRetweetFavorite
pancsmchat Let’s move on to Q2: What does a #pancreaticcancer patient’s hospital recovery look like after surgery? #PancSMThu Jun 5 18:16:00 PDT 2014 ReplyRetweetFavorite
nirajgusani Focusing on surgery for a min – this is still a major procedure w/ complex anatomy and the need for a whole well-versed care team #PancSMThu Jun 5 18:16:24 PDT 2014 ReplyRetweetFavorite
njarellano @NirajGusani @PancSMChat @pancdoc Stop smoking, stop drinking, follows a nutritious diet, seek support after surgical procedure #pancsmThu Jun 5 18:16:53 PDT 2014 ReplyRetweetFavorite
pancdoc @PancSMChat A2: While recovery can be difficult, the majority of patients can recover well enough to be home in 7-10 days #pancsmThu Jun 5 18:17:01 PDT 2014 ReplyRetweetFavorite
pancsmchat .@pancdoc What difficulties might patients encounter post surgery? #pancsmThu Jun 5 18:17:50 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @PancSMChat: Let’s move on to Q2: What does a #pancreaticcancer patient’s hospital recovery look like after surgery? #PancSMThu Jun 5 18:17:58 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @pancdoc: @PancSMChat A2: While recovery can be difficult, the majority of patients can recover well enough to be home in 7-10 days #panThu Jun 5 18:18:02 PDT 2014 ReplyRetweetFavorite
nirajgusani And long term function can be comp. normal – eating well, without diabetes or panc enzyme insuff.- excellent recovery #PancSMThu Jun 5 18:18:17 PDT 2014 ReplyRetweetFavorite
pancdoc @NirajGusani Number one problem is difficulty eating. Can last days, weeks, or even months but ALWAYS gets better #pancsmThu Jun 5 18:19:10 PDT 2014 ReplyRetweetFavorite
mkatzmd one of the most common issues immediately after surgery is inability to eat as you normally would- but this is a temporary problem #pancsmThu Jun 5 18:19:10 PDT 2014 ReplyRetweetFavorite
subatomicdoc @pancdoc @PancSMChat T2: Any tips for patients or caregivers on how to prepare and optimize recovery? #PancSMThu Jun 5 18:19:15 PDT 2014 ReplyRetweetFavorite
nirajgusani Yes – all important – the stronger you are going in, the faster/safer/quicker/better your recovery @NJArellano #PancSMThu Jun 5 18:19:16 PDT 2014 ReplyRetweetFavorite
mkatzmd good nutrition, good energy, good attitude #pancsmThu Jun 5 18:20:03 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @NirajGusani: Yes – all important – the stronger you are going in, the faster/safer/quicker/better your recovery @NJArellano #PancSMThu Jun 5 18:20:14 PDT 2014 ReplyRetweetFavorite
njarellano RT @NirajGusani: Yes – all important – the stronger you are going in, the faster/safer/quicker/better your recovery @NJArellano #PancSMThu Jun 5 18:20:19 PDT 2014 ReplyRetweetFavorite
nirajgusani Ask lots of questions beforehand and be aware of potential setbacks/complications – will help better manage them@subatomicdoc #PancSMThu Jun 5 18:20:24 PDT 2014 ReplyRetweetFavorite
pancdoc @subatomicdoc @PancSMChat Good question. Mental preparation is key. Expect long recovery but be confident that you can pull thru #pancsmThu Jun 5 18:20:29 PDT 2014 ReplyRetweetFavorite
nirajgusani Caregiver / family support is essential – this is a team effort! #PancSMThu Jun 5 18:21:04 PDT 2014 ReplyRetweetFavorite
njarellano @pancdoc what about locally advanced unresectable pancreatic cancer? Controversial? #PancSMThu Jun 5 18:21:09 PDT 2014 ReplyRetweetFavorite
pancsmchat In what ways can you help patients experiencing an inability to eat after surgery? #pancsmThu Jun 5 18:21:24 PDT 2014 ReplyRetweetFavorite
pancsmchat RT @NirajGusani Caregiver / family support is essential – this is a team effort! #PancSMThu Jun 5 18:21:33 PDT 2014 ReplyRetweetFavorite
pancsmchat MT @pancdoc: Mental preparation is key. Expect long recovery but be confident that you can pull thru #pancsmThu Jun 5 18:21:51 PDT 2014 ReplyRetweetFavorite
nirajgusani .@NJArellano controversial, but often there is still hope for cure if tumor responds well to upfront chemo or radiation #PancSMThu Jun 5 18:21:58 PDT 2014 ReplyRetweetFavorite
njarellano RT @NirajGusani: .@NJArellano controversial, but often there is still hope for cure if tumor responds well to upfront chemo or radiation #PThu Jun 5 18:22:27 PDT 2014 ReplyRetweetFavorite
mkatzmd @NirajGusani @NJArellano agree but expectations need to be clear and well-managed by all involved when treating that tough problem #pancsmThu Jun 5 18:22:46 PDT 2014 ReplyRetweetFavorite
pancdoc @NJArellano This is evolving. Aggressive treatment up front can still lead to aggressive surgery for cure #pancsmThu Jun 5 18:22:59 PDT 2014 ReplyRetweetFavorite
nirajgusani There are drugs which can help. Also can temporarily feed via feeding tube or via vein – but key is time to allow healing/recovery #PancSMThu Jun 5 18:23:01 PDT 2014 ReplyRetweetFavorite
subatomicdoc @pancdoc @PancSMChat Great, thanks! I’d think social support helps patients have that mental readiness #pancsmThu Jun 5 18:23:02 PDT 2014 ReplyRetweetFavorite
njarellano RT @mkatzmd: @NirajGusani @NJArellano agree but expectations need to be clear and well-managed by all involved when treating that tough pro…Thu Jun 5 18:23:08 PDT 2014 ReplyRetweetFavorite
njarellano RT @pancdoc: @NJArellano This is evolving. Aggressive treatment up front can still lead to aggressive surgery for cure #pancsmThu Jun 5 18:23:10 PDT 2014 ReplyRetweetFavorite
nirajgusani Always gets better, usually without additional procedures/surgery #PancSMThu Jun 5 18:23:53 PDT 2014 ReplyRetweetFavorite
mkatzmd @NirajGusani do you place a feeding tube for all patients, selectively, or never? #pancsmThu Jun 5 18:24:30 PDT 2014 ReplyRetweetFavorite
cancersurg With locally advanced pancreas cancer advances are baby steps but happening! Cynicism is the enemy. #PancSMThu Jun 5 18:24:34 PDT 2014 ReplyRetweetFavorite
nirajgusani Yes – need upfront involvement of all team members – surgical, medical, rad. oncologists, other physicians, patient’s care team #PancSMThu Jun 5 18:24:51 PDT 2014 ReplyRetweetFavorite
njarellano Only 15 to 20% of patients have resectable disease at diagnosis . What is your opinion ? #pancsmThu Jun 5 18:25:00 PDT 2014 ReplyRetweetFavorite
nirajgusani Feeding tube almost never – exceptions in frail very elderly or pts who are very malnourished preop #PancSMThu Jun 5 18:25:42 PDT 2014 ReplyRetweetFavorite
klemansdl @pancdoc @subatomicdoc @PancSMChat Also building rapport with surgeon & team to be confident in the care #pancsmThu Jun 5 18:25:45 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @NirajGusani: Yes – need upfront involvement of all team members – surgical, medical, rad. oncologists, other physicians, patient’s care…Thu Jun 5 18:25:53 PDT 2014 ReplyRetweetFavorite
mkatzmd @NirajGusani yes exactly my practice as well #pancsmThu Jun 5 18:26:02 PDT 2014 ReplyRetweetFavorite
nirajgusani Welcome @klemansdl – yes – need to understand each other well to optimize care – great point #PancSMThu Jun 5 18:26:35 PDT 2014 ReplyRetweetFavorite
njarellano What is the criteria for unresectability? #PancSMThu Jun 5 18:27:00 PDT 2014 ReplyRetweetFavorite
ekwallace8 RT @PancSMChat: MT @pancdoc: A1: the number one reason for pancreatic surgery is hope for cure #pancsmThu Jun 5 18:27:06 PDT 2014 ReplyRetweetFavorite
osuccc_james Experts from #TheJames are talking #pancreaticcancer! Join @pancdoc @cancersurg and @klemansdl for #PancSM until 10 pm!Thu Jun 5 18:27:24 PDT 2014 ReplyRetweetFavorite
pancdoc RT @cancersurg: With locally advanced pancreas cancer advances are baby steps but happening! Cynicism is the enemy. #PancSMThu Jun 5 18:27:33 PDT 2014 ReplyRetweetFavorite
ekwallace8 RT @PancSMChat: MT @pancdoc: Mental preparation is key. Expect long recovery but be confident that you can pull thru #pancsmThu Jun 5 18:28:25 PDT 2014 ReplyRetweetFavorite
pancsmchat Q3: What should pancreatic cancer patients do following hospital discharge to ensure a speedy recovery? #PANCSMThu Jun 5 18:28:27 PDT 2014 ReplyRetweetFavorite
nirajgusani .@NJArellano Recent consensus about “borderline” resectable panc ca http://t.co/LLdkbfCCWv #PancSMThu Jun 5 18:28:48 PDT 2014 ReplyRetweetFavorite
njarellano RT @NirajGusani: .@NJArellano Recent consensus about “borderline” resectable panc ca http://t.co/LLdkbfCCWv #PancSMThu Jun 5 18:28:55 PDT 2014 ReplyRetweetFavorite
pancdoc @PancSMChat A3: be patient. have confidence. communicate with surgical team about problems/concern. did i say be patient? #pancsmThu Jun 5 18:29:30 PDT 2014 ReplyRetweetFavorite
pancsmchat Thanks for joining us @cancersurg @klemansdl @EKWallace8! #pancsmThu Jun 5 18:29:32 PDT 2014 ReplyRetweetFavorite
subatomicdoc RT @NirajGusani: .@NJArellano Recent consensus about “borderline” resectable panc ca http://t.co/LLdkbfCCWv #PancSMThu Jun 5 18:29:35 PDT 2014 ReplyRetweetFavorite
nirajgusani .@NJArellano also @mkatzmd and his group have done much work in this area to help define and understand resectability #PancSMThu Jun 5 18:29:42 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT “@PancSMChat: Q3: What should #pancreaticcancer patients do following hospital discharge to ensure a speedy recovery? #PANCSMThu Jun 5 18:29:47 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @pancdoc: @PancSMChat A3: be patient. have confidence. communicate with surgical team about problems/concern. did i say be patient?#panThu Jun 5 18:30:00 PDT 2014 ReplyRetweetFavorite
pancancolumbus RT @OSUCCC_James: Experts from #TheJames are talking #pancreaticcancer! Join @pancdoc @cancersurg and @klemansdl for #PancSM until 10 pm!Thu Jun 5 18:30:01 PDT 2014 ReplyRetweetFavorite
mkatzmd Key in postop period is patience and attitude. totally agree 100% #pancsmThu Jun 5 18:30:03 PDT 2014 ReplyRetweetFavorite
klemansdl @PancSMChat Understand discharge instructions, communicate well with team #pancsmThu Jun 5 18:30:30 PDT 2014 ReplyRetweetFavorite
pancan Facing #pancreaticcancer? Learn more about different types of surgery http://t.co/DA6VHEJoPC #pancsmThu Jun 5 18:30:45 PDT 2014 ReplyRetweetFavorite
nirajgusani This is like major repair for car- if you hear a noise 1 week later, often just need a tuneup, doesn’t mean engine is gonna fall out #PancSMThu Jun 5 18:31:48 PDT 2014 ReplyRetweetFavorite
njarellano @mkatzmd I agree #pancsmThu Jun 5 18:32:03 PDT 2014 ReplyRetweetFavorite
mkatzmd I advise prescribe nutritional supplements both preoperatively and postoperatively. #pancsmThu Jun 5 18:32:14 PDT 2014 ReplyRetweetFavorite
nirajgusani @PanCAN thanks for this great resource – you guys produce great educ materials for #PancreaticCancer patients #PancSMThu Jun 5 18:32:25 PDT 2014 ReplyRetweetFavorite
ambrygenetics Great resource! “@PanCAN: Facing #pancreaticcancer? Learn more about different types of surgery http://t.co/4dPstBgAAn #pancsmThu Jun 5 18:32:28 PDT 2014 ReplyRetweetFavorite
lizlincolnwritr RT @PanCAN: Facing #pancreaticcancer? Learn more about different types of surgery http://t.co/DA6VHEJoPC #pancsmThu Jun 5 18:32:34 PDT 2014 ReplyRetweetFavorite
caylin13 RT @PanCAN: Facing #pancreaticcancer? Learn more about different types of surgery http://t.co/DA6VHEJoPC #pancsmThu Jun 5 18:32:45 PDT 2014 ReplyRetweetFavorite
pancsmchat RT @PanCAN: Facing #pancreaticcancer? Learn more about different types of surgery http://t.co/CvgP3JM2Dw #pancsmThu Jun 5 18:32:51 PDT 2014 ReplyRetweetFavorite
nirajgusani .@mkatzmd Yes – and physical activity is key… we are studying a prehabilitation program for pts http://t.co/3pz6a12Qrk #PancSMThu Jun 5 18:33:33 PDT 2014 ReplyRetweetFavorite
mkatzmd Yes. Our interest as well. Incredibly important. #pancsmThu Jun 5 18:34:00 PDT 2014 ReplyRetweetFavorite
jcmanu66 RT @AmbryGenetics: Great resource! “@PanCAN: Facing #pancreaticcancer? Learn more about different types of surgery http://t.co/4dPstBgAAn#…Thu Jun 5 18:34:19 PDT 2014 ReplyRetweetFavorite
ekwallace8 MT @pancdoc @PancSMChat A3: be patient. have confidence. communicate w/surgical team about problems. did i say be patient? #pancsm#pancsmThu Jun 5 18:35:00 PDT 2014 ReplyRetweetFavorite
pancsmchat Q4: We touched on difficulty eating, but what other side effects should patients recovering from surgery expect? #PANCSMThu Jun 5 18:35:26 PDT 2014 ReplyRetweetFavorite
nirajgusani RT @pancdoc: @PancSMChat A3: be patient. have confidence. communicate with surgical team about problems/concern. did i say be patient?#panThu Jun 5 18:35:35 PDT 2014 ReplyRetweetFavorite
hcaoncnursenav RT @NirajGusani: .@NJArellano Recent consensus about “borderline” resectable panc ca http://t.co/LLdkbfCCWv #PancSMThu Jun 5 18:35:39 PDT 2014 ReplyRetweetFavorite
pancdoc @PancSMChat A4: Bowel problems are common. particularly diarrhea #pancsmThu Jun 5 18:36:08 PDT 2014 ReplyRetweetFavorite
mkatzmd I would say the major one is being tired easily #pancsmThu Jun 5 18:36:11 PDT 2014 ReplyRetweetFavorite
pancsmchat MT @NirajGusani: @PSHResearch studying a prehabilitation program for #pancreaticcancer patients: http://t.co/5l1wDgrzba #PancSMThu Jun 5 18:36:24 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @PancSMChat: Q4: We touched on difficulty eating, but what other side effects should patients recovering from surgery expect? #PANCSMThu Jun 5 18:36:37 PDT 2014 ReplyRetweetFavorite
pancdoc @mkatzmd agree. fatigue last the longest. requires good nutrition and exercise to improve #pancsmThu Jun 5 18:36:48 PDT 2014 ReplyRetweetFavorite
nirajgusani T4 I tell everyone to expect 2 months or longer before full recovery – this is a long process – but full recovery is goal #PancSMThu Jun 5 18:36:48 PDT 2014 ReplyRetweetFavorite
mkatzmd and the other major one is depression. essentially everybody. #pancsmThu Jun 5 18:36:57 PDT 2014 ReplyRetweetFavorite
klemansdl Also goes beyond physical symptoms – psychosocial issues (work, relationship strain, depression) #pancsmThu Jun 5 18:37:02 PDT 2014 ReplyRetweetFavorite
dianereidylagun @dianereidylagun eating can also be difficult. small frequent meals are key. #PancSMThu Jun 5 18:37:20 PDT 2014 ReplyRetweetFavorite
pancdoc @NirajGusani I tell patients “solid 6 months of recovery” #pancsmThu Jun 5 18:37:27 PDT 2014 ReplyRetweetFavorite
nirajgusani .@klemansdl yes – important issues both in recovery and survivorship #PancSMThu Jun 5 18:37:34 PDT 2014 ReplyRetweetFavorite
mkatzmd Agree completely. 6 months to recovery. #pancsmThu Jun 5 18:37:44 PDT 2014 ReplyRetweetFavorite
pancsmchat What is the ideal amount of physical activity after undergoing surgery? #pancsmThu Jun 5 18:37:50 PDT 2014 ReplyRetweetFavorite
ekwallace8 So true! RT @klemansdl Also goes beyond physical symptoms – psychosocial issues (work, relationship strain, depression) #pancsm #pancsmThu Jun 5 18:38:06 PDT 2014 ReplyRetweetFavorite
mkatzmd I’m not sure you can really “over-do” it! #pancsmThu Jun 5 18:38:19 PDT 2014 ReplyRetweetFavorite
pancdoc @PancSMChat ideal activity is as much as can be tolerated. #pancsmThu Jun 5 18:38:24 PDT 2014 ReplyRetweetFavorite
pancdoc RT @mkatzmd I’m not sure you can really “over-do” it! #pancsmThu Jun 5 18:38:29 PDT 2014 ReplyRetweetFavorite
nirajgusani .@PancSMChat Your body will tell you – push yourself to do a little bit more phys activity each day – don’t need to run a marathon! #PancSMThu Jun 5 18:38:32 PDT 2014 ReplyRetweetFavorite
njarellano @PancSMChat nausea vomiting or heartburn can lead to difficulty eating “gastric ileus” or temporary paralysis of the stomach #pancsmThu Jun 5 18:38:49 PDT 2014 ReplyRetweetFavorite
pancsmchat What do you recommend for patients experiencing depression or other psychosocial issues? #pancsmThu Jun 5 18:39:01 PDT 2014 ReplyRetweetFavorite
pancdoc I find patients are afraid they are fragile inside. Don’t worry, you won’t break. Be active! #pancsmThu Jun 5 18:39:04 PDT 2014 ReplyRetweetFavorite
pancsmchat RT @pancdoc: I find patients are afraid they are fragile inside. Don’t worry, you won’t break. Be active! #pancsmThu Jun 5 18:39:14 PDT 2014 ReplyRetweetFavorite
nirajgusani Yes – can’t hurt yourself by walking, doing physical activity @pancdoc #PancSMThu Jun 5 18:39:47 PDT 2014 ReplyRetweetFavorite
mkatzmd Depression can be hard to deal with effectively because many patients are afraid/ashamed to address it #pancsmThu Jun 5 18:39:53 PDT 2014 ReplyRetweetFavorite
pancan @PanCAN recommends that all patients consider clinical trials when exploring treatment options #pancsm http://t.co/4ClX4hHgc6Thu Jun 5 18:40:02 PDT 2014 ReplyRetweetFavorite
pancdoc @PancSMChat Must ask for help. Although not a chemical depression, sadness and dejection can be treated with meds #pancsmThu Jun 5 18:40:06 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @mkatzmd: I would say the major one is being tired easily #pancsmThu Jun 5 18:40:27 PDT 2014 ReplyRetweetFavorite
ekwallace8 MT @NirajGusani Your body will tell you – push yourself to do a little more activity each day -don’t need to run a marathon! #PancSM #pancsmThu Jun 5 18:40:32 PDT 2014 ReplyRetweetFavorite
nirajgusani Yes – ideally would have psychosocial counseling & support available – but often have to rely on caregivers, family doc, pastor, etc #PancSMThu Jun 5 18:40:44 PDT 2014 ReplyRetweetFavorite
klemansdl @PancSMChat Communicate with providers – be honest. Our Panc Ca Survivorship clinic helps address & normalize. Meds, Counseling #pancsmThu Jun 5 18:40:44 PDT 2014 ReplyRetweetFavorite
dianereidylagun @dianereidylagun In the beginning it should be slow and steady, patients WILL turn the corner and feel better. #pancSMThu Jun 5 18:41:09 PDT 2014 ReplyRetweetFavorite
subatomicdoc @mkatzmd Common in many cancers, but I do see emotional distress a lot in pancreatic cancer, too. #pancsmThu Jun 5 18:41:12 PDT 2014 ReplyRetweetFavorite
mkatzmd I’d like to hear more about the survivorship clinic. that sounds awesome #pancsmThu Jun 5 18:41:16 PDT 2014 ReplyRetweetFavorite
pancdoc I think of myself as a glorified cheerleader. Patients sometimes feels they will never get better. I just cheer them on. You will! #pancsmThu Jun 5 18:41:25 PDT 2014 ReplyRetweetFavorite
nirajgusani Yes – no all you can eat buffets! @NJArellano @PancSMChat #PancSMThu Jun 5 18:41:30 PDT 2014 ReplyRetweetFavorite
osuccc_james MT @klemansdl: Communicate with providers – be honest. Our Panc Ca Survivorship clinic helps address & normalize. Meds, Counseling #pancsmThu Jun 5 18:41:35 PDT 2014 ReplyRetweetFavorite
nirajgusani A very important issue – impt to screen for sub-clinical Emot Distress @subatomicdoc @mkatzmd #PancSMThu Jun 5 18:42:18 PDT 2014 ReplyRetweetFavorite
pancsmchat Any special dietary recommendations? RT @NirajGusani Yes – no all you can eat buffets! @NJArellano @PancSMChat #PancSMThu Jun 5 18:42:28 PDT 2014 ReplyRetweetFavorite
pancdoc @mkatzmd Survivorship clinic begins at diagnosis. Addresses emotional, social, physical, and financial stressors #pancsmThu Jun 5 18:42:36 PDT 2014 ReplyRetweetFavorite
jonessurgery @pancdoc Great to see you on here, doc, esp working with @NirajGusani! #pancsm is a wonderful project—best of luck!Thu Jun 5 18:42:54 PDT 2014 ReplyRetweetFavorite
nirajgusani Yes – me too – we have one but would love to share best practices @mkatzmd @pancdoc #PancSMThu Jun 5 18:42:59 PDT 2014 ReplyRetweetFavorite
njarellano @NirajGusani @PancSMChat #pancsm important to remember to drink fluid to stay hydratedThu Jun 5 18:42:59 PDT 2014 ReplyRetweetFavorite
ekwallace8 RT @pancdoc @mkatzmd Survivorship clinic begins at diagnosis. Addresses emotional, social, physical, and financial stressors #pancsm #pancsmThu Jun 5 18:43:09 PDT 2014 ReplyRetweetFavorite
njarellano RT @PancSMChat: Any special dietary recommendations? RT @NirajGusani Yes – no all you can eat buffets! @NJArellano @PancSMChat#PancSMThu Jun 5 18:43:26 PDT 2014 ReplyRetweetFavorite
nirajgusani RT @NJArellano: @NirajGusani @PancSMChat #pancsm important to remember to drink fluid to stay hydratedThu Jun 5 18:43:28 PDT 2014 ReplyRetweetFavorite
klemansdl @mkatzmd We start a day 1 – distress screen, psychsoc support, care coord, referrals (ie tob cessation, psych) #pancsmThu Jun 5 18:43:43 PDT 2014 ReplyRetweetFavorite
osuccc_james RT @pancdoc: Survivorship clinic begins at diagnosis. Addresses emotional, social, physical, and financial stressors #pancsmThu Jun 5 18:43:46 PDT 2014 ReplyRetweetFavorite
nirajgusani Yes – I tell pts to hydrate until urine almost clear @NJArellano @PancSMChat #PancSMThu Jun 5 18:43:50 PDT 2014 ReplyRetweetFavorite
njarellano RT @NirajGusani: Yes – I tell pts to hydrate until urine almost clear @NJArellano @PancSMChat #PancSMThu Jun 5 18:44:02 PDT 2014 ReplyRetweetFavorite
caylin13 RT @PanCAN: @PanCAN recommends that all patients consider clinical trials when exploring treatment options #pancsm http://t.co/4ClX4hHgc6Thu Jun 5 18:44:11 PDT 2014 ReplyRetweetFavorite
mkatzmd @klemansdl that’s really fantastic. #pancsmThu Jun 5 18:44:23 PDT 2014 ReplyRetweetFavorite
pancdoc @jonessurgery @NirajGusani Thanks. good to see you here. #pancsmThu Jun 5 18:44:27 PDT 2014 ReplyRetweetFavorite
ekwallace8 MT @OSUCCC_James @klemansdl: Communicate w/providers – be honest. Our Panc Ca Survivorship clinic helps address & normalize #pancsm#pancsmThu Jun 5 18:44:27 PDT 2014 ReplyRetweetFavorite
nirajgusani And support groups can be very beneficial… also social work support to deal with job/ins issues, FMLA, etc @klemansdl @mkatzmd #PancSMThu Jun 5 18:44:45 PDT 2014 ReplyRetweetFavorite
pancdoc Fluids are all I even offer while in hospital. I have patients try solids slowly over time at home #pancsmThu Jun 5 18:45:34 PDT 2014 ReplyRetweetFavorite
giantbuckeye RT @OSUCCC_James: Experts from #TheJames are talking #pancreaticcancer! Join @pancdoc @cancersurg and @klemansdl for #PancSM until 10 pm!Thu Jun 5 18:45:34 PDT 2014 ReplyRetweetFavorite
nirajgusani Hi @jonessurgery – recovered from #igsjc ? #PancSM – talk about cross-pollinationThu Jun 5 18:45:37 PDT 2014 ReplyRetweetFavorite
jonessurgery @cancersurg Great to see you on here, too! I may not be a surgical oncologist, but I’m thrilled to see #pancsm bringing out good ones!Thu Jun 5 18:45:54 PDT 2014 ReplyRetweetFavorite
pancsmchat Q5: How are cancer centers around the country working to improve pancreatic cancer surgical treatments and outcomes? #PANCSMThu Jun 5 18:46:11 PDT 2014 ReplyRetweetFavorite
nirajgusani RT #PancSM @NJArellano: working w the clinical nutritionist in order to create a handout so patient can anticipate what to expect after rxThu Jun 5 18:46:31 PDT 2014 ReplyRetweetFavorite
njarellano RT @NirajGusani: RT #PancSM @NJArellano: working w the clinical nutritionist in order to create a handout so patient can anticipate what to…Thu Jun 5 18:46:46 PDT 2014 ReplyRetweetFavorite
nirajgusani Thanks for participating… please add #PancSM to all tweet to help us capture your thoughts…Thu Jun 5 18:46:57 PDT 2014 ReplyRetweetFavorite
mkatzmd The key to improving pancreatic surgical outcomes is to surround the surgeon with a team that makes him/her look good #pancsmThu Jun 5 18:47:24 PDT 2014 ReplyRetweetFavorite
pancdoc @PancSMChat A5: cancer centers build teams to address specific diseases in a multidisciplinary fashion. huge help in all phases #pancsmThu Jun 5 18:47:33 PDT 2014 ReplyRetweetFavorite
nirajgusani Hi Carl – are you practicing your “leadership” skills? @jonessurgery @cancersurg #pancSM @pancdocThu Jun 5 18:48:04 PDT 2014 ReplyRetweetFavorite
pancdoc Amen! RT @mkatzmd The key to improving pancreatic surgical outcomes is to surround the surgeon with a team #pancsmThu Jun 5 18:48:17 PDT 2014 ReplyRetweetFavorite
klemansdl @PancSMChat Acknowledging the distress of patients AND caregivers. Help w/ emot, soc, phys, spiritual well-being #pancsmThu Jun 5 18:48:37 PDT 2014 ReplyRetweetFavorite
jonessurgery @NirajGusani Barely recovered from #igsjc & full live tweet of #acspcp: 400 tweets in three days. #pancsm not my thing, but great to see!Thu Jun 5 18:48:44 PDT 2014 ReplyRetweetFavorite
ekwallace8 MT @pancdoc A5: cancer centers build teams 2 address specif diseases in a multidisciplinary fashion. huge help in all phases #pancsm #pancsmThu Jun 5 18:49:14 PDT 2014 ReplyRetweetFavorite
nirajgusani Yes – echo @pancdoc @mkatzmd @PancSMChat it’s all about a good team #PancSMThu Jun 5 18:49:14 PDT 2014 ReplyRetweetFavorite
pancsmchat .@NirajGusani and @mkatzmd briefly touched on studies related to #pancreaticcancer surgery earlier. Can you expand on research? #pancsmThu Jun 5 18:49:20 PDT 2014 ReplyRetweetFavorite
nirajgusani .@pancdoc @mkatzmd – need skilled folks across the spectrum to adequately and optimally treat #PancreaticCancer #PancSMThu Jun 5 18:49:51 PDT 2014 ReplyRetweetFavorite
njarellano @PancSMChat improving outcomes #PancSMThu Jun 5 18:50:03 PDT 2014 ReplyRetweetFavorite
nirajgusani RT @klemansdl: @PancSMChat Acknowledging the distress of patients AND caregivers. Help w/ emot, soc, phys, spiritual well-being #pancsmThu Jun 5 18:50:04 PDT 2014 ReplyRetweetFavorite
osuccc_james MT @pancdoc: Cancer centers build teams to address specific diseases in a multidisciplinary fashion. huge help in all phases #pancsmThu Jun 5 18:50:09 PDT 2014 ReplyRetweetFavorite
pancan Since ’02, the PALS program has provided info and resources to > 80,000 patients and families. Let us help you! #pancsmThu Jun 5 18:50:15 PDT 2014 ReplyRetweetFavorite
pancdoc RT @PanCAN Since ’02, the PALS program has provided info and resources to > 80,000 patients and families. Let us help you! #pancsmThu Jun 5 18:50:30 PDT 2014 ReplyRetweetFavorite
caylin13 RT @PanCAN: Since ’02, the PALS program has provided info and resources to > 80,000 patients and families. Let us help you! #pancsmThu Jun 5 18:50:33 PDT 2014 ReplyRetweetFavorite
ekwallace8 MT @klemansdl @PancSMChat Acknowledging distress of patients AND caregivers. Help w/ emot, soc, phys, spiritual well-being #pancsm #pancsmThu Jun 5 18:50:35 PDT 2014 ReplyRetweetFavorite
dianereidylagun @dianereidylagun @sloan_kettering this disease demands a team effort – lab scientists, docs nurses all work together to do better #pancSMThu Jun 5 18:50:41 PDT 2014 ReplyRetweetFavorite
pancsmchat MT @NirajGusani: Need skilled folks across the spectrum to adequately and optimally treat #PancreaticCancer #PancSMThu Jun 5 18:50:46 PDT 2014 ReplyRetweetFavorite
pancsmchat MT @DianeReidyLagun: This disease demands a team effort – lab scientists, docs, nurses all work together to do better. #pancSMThu Jun 5 18:51:17 PDT 2014 ReplyRetweetFavorite
nirajgusani Grt prog RT @PanCAN: Since ’02, the PALS program has provided info and resources to > 80,000 patients and families. Let us help you! #pancsmThu Jun 5 18:51:27 PDT 2014 ReplyRetweetFavorite
njarellano @PancSMChat Early detection, accurate diagnosis and appropriate intervention are the keys to survival #pancsmThu Jun 5 18:51:34 PDT 2014 ReplyRetweetFavorite
pancsmchat RT @NJArellano: Early detection, accurate diagnosis and appropriate intervention are the keys to survival #pancsmThu Jun 5 18:51:51 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @DianeReidyLagun: @dianereidylagun @sloan_kettering this disease demands a team effort – lab scientists, docs nurses all work together …Thu Jun 5 18:51:53 PDT 2014 ReplyRetweetFavorite
ekwallace8 RT @NJArellano @PancSMChat Early detection, accurate diagnosis and appropriate intervention are the keys to survival #pancsm #pancsmThu Jun 5 18:52:02 PDT 2014 ReplyRetweetFavorite
njarellano RT @PancSMChat: RT @NJArellano: Early detection, accurate diagnosis and appropriate intervention are the keys to survival #pancsmThu Jun 5 18:52:04 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @PancSMChat: MT @NirajGusani: Need skilled folks across the spectrum to adequately and optimally treat #PancreaticCancer #PancSMThu Jun 5 18:52:11 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @NJArellano: @PancSMChat Early detection, accurate diagnosis and appropriate intervention are the keys to survival #pancsmThu Jun 5 18:52:21 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @PancSMChat: RT @NJArellano: Early detection, accurate diagnosis and appropriate intervention are the keys to survival #pancsmThu Jun 5 18:52:32 PDT 2014 ReplyRetweetFavorite
nirajgusani Research: At @PennStHershey we focus on optimizing periop outcomes by addressing frailty, Qual of Life, phys activ & survivship #pancsmThu Jun 5 18:53:39 PDT 2014 ReplyRetweetFavorite
nirajgusani RT @EKWallace8: RT @NJArellano @PancSMChat Early detection, accurate diagnosis and appropriate intervention are the keys to survival#pancsThu Jun 5 18:54:14 PDT 2014 ReplyRetweetFavorite
nirajgusani RT @NJArellano: @PancSMChat Early detection, accurate diagnosis and appropriate intervention are the keys to survival #pancsmThu Jun 5 18:54:25 PDT 2014 ReplyRetweetFavorite
nirajgusani RT @PancSMChat: MT @DianeReidyLagun: This disease demands a team effort – lab scientists, docs, nurses all work together to do better. #panThu Jun 5 18:54:32 PDT 2014 ReplyRetweetFavorite
pancan We have more than 100 survivor stories on our website! Read about their stories of #hope http://t.co/IOBxfXEbih #pancsmThu Jun 5 18:55:10 PDT 2014 ReplyRetweetFavorite
dianereidylagun @dianereidylagun there is a huge international scientific effort to better understand the disease #pancsmThu Jun 5 18:55:11 PDT 2014 ReplyRetweetFavorite
pancsmchat RT @DianeReidyLagun: there is a huge international scientific effort to better understand the disease #pancsmThu Jun 5 18:55:26 PDT 2014 ReplyRetweetFavorite
caylin13 RT @PanCAN: We have more than 100 survivor stories on our website! Read about their stories of #hope http://t.co/IOBxfXEbih #pancsmThu Jun 5 18:55:36 PDT 2014 ReplyRetweetFavorite
ekwallace8 RT @DianeReidyLagun @dianereidylagun there is a huge international scientific effort to better understand the disease #pancsm #pancsmThu Jun 5 18:55:53 PDT 2014 ReplyRetweetFavorite
njarellano @PancSMChat combination of leading-edge diagnostic techniques, refined surgical procedures & effective drug rx available = new hope #pancsmThu Jun 5 18:55:54 PDT 2014 ReplyRetweetFavorite
pancdoc Great discussion tonite. Keep the conversation going throughout the month. Looking forward to next month. Maybe we can talk research #pancsmThu Jun 5 18:56:17 PDT 2014 ReplyRetweetFavorite
nirajgusani Yes – much great research underway – slowly but surely improving outcomes but still a long way to go… @DianeReidyLagun #PancSMThu Jun 5 18:56:18 PDT 2014 ReplyRetweetFavorite
njarellano RT @PancSMChat: RT @DianeReidyLagun: there is a huge international scientific effort to better understand the disease #pancsmThu Jun 5 18:56:32 PDT 2014 ReplyRetweetFavorite
pancsmchat RT @NirajGusani Yes – much great research underway – slowly but surely improving outcomes but still a long way to go… #PancSMThu Jun 5 18:56:37 PDT 2014 ReplyRetweetFavorite
mkatzmd @pancdoc I’m in! #pancsmThu Jun 5 18:56:40 PDT 2014 ReplyRetweetFavorite
dianereidylagun @dianereidylagun At MSK we just opened the Rubenstein Center for Pancreatic Research. #PancSMThu Jun 5 18:56:41 PDT 2014 ReplyRetweetFavorite
jeffhoover17 RT @PanCAN: We have more than 100 survivor stories on our website! Read about their stories of #hope http://t.co/IOBxfXEbih #pancsmThu Jun 5 18:56:44 PDT 2014 ReplyRetweetFavorite
ekwallace8 MT @pancdoc Great discussion tonite. Keep the conversation going. Looking forward to next month. Maybe we can talk research #pancsm #pancsmThu Jun 5 18:56:50 PDT 2014 ReplyRetweetFavorite
pancsmchat We’re almost out of time for tonight! Any other information to share with folks about recovering from pancreatic surgery? #pancsmThu Jun 5 18:56:51 PDT 2014 ReplyRetweetFavorite
ambrygenetics Beautiful! RT “@PanCAN: We have more than 100 survivor stories on our website! Read stories of #hope http://t.co/CzNfu3C0LB #pancsmThu Jun 5 18:57:07 PDT 2014 ReplyRetweetFavorite
nirajgusani Yes – key message from tonight is that there is HOPE for patients with @PancreaticCancer #PancSMThu Jun 5 18:57:12 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @NJArellano: @PancSMChat combination of leading-edge diagnostic techniques, refined surgical procedures & effective drug rx available = …Thu Jun 5 18:57:25 PDT 2014 ReplyRetweetFavorite
nirajgusani RT @DianeReidyLagun: @dianereidylagun At MSK we just opened the Rubenstein Center for Pancreatic Research. #PancSMThu Jun 5 18:57:27 PDT 2014 ReplyRetweetFavorite
pancdoc RT @NirajGusani Yes – key message from tonight is that there is HOPE for patients with @PancreaticCancer #PancSMThu Jun 5 18:57:29 PDT 2014 ReplyRetweetFavorite
ambrygenetics RT @NirajGusani: Yes – key message from tonight is that there is HOPE for patients with @PancreaticCancer #PancSMThu Jun 5 18:57:47 PDT 2014 ReplyRetweetFavorite
ekwallace8 RT @NirajGusani Yes – key message from tonight is that there is HOPE for patients with @PancreaticCancer #PancSM #pancsmThu Jun 5 18:57:49 PDT 2014 ReplyRetweetFavorite
drewshirleymd @pancdoc that topic gets my vote! #pancsmThu Jun 5 18:57:54 PDT 2014 ReplyRetweetFavorite
nirajgusani Yes – could spend hours discussing research – very important and very exciting! @pancdoc #pancsmThu Jun 5 18:58:10 PDT 2014 ReplyRetweetFavorite
drewshirleymd RT @NirajGusani: Yes – key message from tonight is that there is HOPE for patients with @PancreaticCancer #PancSMThu Jun 5 18:58:21 PDT 2014 ReplyRetweetFavorite
dianereidylagun @dianereidylagun we are all fighting for that cure together- we are traveling the journey wiht you. #PancSMThu Jun 5 18:58:40 PDT 2014 ReplyRetweetFavorite
njarellano @NirajGusani Yes ! Hope to patients and families #pancsmThu Jun 5 18:58:42 PDT 2014 ReplyRetweetFavorite
pancdoc RT @DianeReidyLagun @dianereidylagun we are all fighting for that cure together- we are traveling the journey wiht you. #PancSMThu Jun 5 18:58:50 PDT 2014 ReplyRetweetFavorite
nirajgusani RT @DianeReidyLagun: @dianereidylagun we are all fighting for that cure together- we are traveling the journey wiht you. #PancSMThu Jun 5 18:58:58 PDT 2014 ReplyRetweetFavorite
pancsmchat RT @DianeReidyLagun: we are all fighting for that cure together- we are traveling the journey with you. #PancSMThu Jun 5 18:59:19 PDT 2014 ReplyRetweetFavorite
nirajgusani Thanks to our @pancSMchat moderators and to @pancdoc @DianeReidyLagun @mkatzmd and all contributors for a great 1st #PancSM chatThu Jun 5 18:59:54 PDT 2014 ReplyRetweetFavorite
pancsmchat Thank you all for joining us tonight! See you on July 3 at 9 pm ET for the next #PANCSM chat! Looks like we’ll be talking research! 🙂Thu Jun 5 19:00:03 PDT 2014 ReplyRetweetFavorite
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